This popped into view last evening and am actually excited . Rarely discussed or even recognised but many of us have discussed this and even if you have menopause inducing surgery and have problems getting problems dealt with after that. Age also proves a bar to getting access to treatment.
Recommended that it’s annual checks - not that they have too much idea of what to do then but all the same finally recognition that it’s a thing is a huge step forward . As are the questions about what does endo look like post menopause rather than “ it goes away because you’ve no uterus or ovaries approach” . It paves the way to a wider discussion as to other engines of the disease beyond oestrogen which can only be good for a wider understanding and hopefully newer treatments for us all. The proposal of annual checks seems completely sensible to me -across the board - and am hoping Endometriosis UK will pick up on this to campaign on on our behalf . It’s time this was integrated into the NICE guidelines on Endo treatment and care.
Great to see that post-menopausal endo is being researched and taken more seriously, even if it is early days. So many people seem to have some endo symptoms remaining after they've been through the menopause. Thanks for sharing the article.
My case! Sudden endo at 32, no symptoms, stage 4, then two lap surgeries+6/4 months Ghrh agonists, 1998 and 2000, and NO symptoms (+ a baby) until 2023! Suddenly, at 56 (using HRT), back again! New surgery, with highly speciallised Dr. . Then back to HRT, no need to stop it if surgery (lap, no hysterectomy) is successful. Good luck all!
Thanks for the info. I'm glad they are looking into this. I always wonder if it's scar tissue from the removal of my lady parts and the scraping off of endometriosis of my remaining organs that cause me discomfort today, years later, or if it's new endometriosis or endometriosis that was left behind.
It's a little scary to read that it can lead to malignancies. That is the first I've heard that.
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