reoccurrent miscarriage & endo

[Olive8000]

Hi all. I had a laparoscopy last week, I was lucky as it was only one month after suspecting I could have endo. Although I think it was the cause of my 6 miscarriages and 2 failed ivf attempts. I’m feeling pretty enraged that not one of the 5 fertility doctors I’ve seen suggested it could be endo, even though they could clearly see my ovary was behind my uterus on ultrasound. It turns out it was stuck there with endo tissue. They sent me for so many other tests that all came back normal (the cynical part of me keeps thinking that these tests were all ones from which they profited from). It blows my mind that they seem to rely on whether you missed work because of pain or bleeding as seemingly the only criteria used to assess whether endo could be a factor.

I’ve had all of my endo removed, but I’m now nearly 41, so naturally worried that we may still continue to have a bumpy ride ahead.

Has anyone else had similar experiences of reoccurrent miscarriage due to endo?

Update June 2024: I just wanted to update this post in case anyone who is in a similar position finds it. I’m currently 12 weeks pregnant from a natural conception with our rainbow baby. I know we are not out of the woods yet, but this pregnancy has been completely different to the others that all ended 6/7 weeks. We saw a heartbeat for the first time at 6.5 weeks and I’ve now had 4 scans (because of my history) and everything is looking good.

We waited 3-4 months before ttc to wait for the pain at ovulation and period to go away and I saw a nutritionist to ensure I was doing everything i can to prepare for good egg quality and reduce inflammation - 3 grams of omega 3 I believe has been a game changer for me. Then when we tried I fell pregnant straight away with this baby.

I’m not convinced my endo isn’t growing back as I can feel it on the left side, I have my 6 month follow up with the consultant tomorrow so will find out more. Hope this helps anyone who have been incorrectly diagnosed with unexplained infertility or anyone who is debating surgery.

[Endofitall]

I have no solutions or answers but just wanted to say I understand and hear you. We’ve had 5 failed embryo transfers from 3 IVF cycles and had so many invasive expensive tests as you say. Been constantly gaslit and dismissed. Feel angry that while now my chances might be better post op they are much lower than 4 years ago when I was right side of 35 y. I really hope things go well for you from here x

[Olive8000 in reply to Endofitall]

Thank you so much for replying, it does mean something to know you’re not alone, whilst simultaneously not wishing this on anyone!!

I’m sorry to hear what you’ve been through, but so glad you’ve now hopefully got a solution. I’m keeping everything crossed for you. Will you be going for another round on ivf?