Hi everyone, I posted a couple of days to complain about my horrible experience at A&E and also mentioned that I had an appointment on Monday, I had my consultation yesterday and I’m finally moving forwards in my treatment. I informed the consultant that I’ve been bleeding for a whole month on the Provera after he asked about my experience and said that I am one of the unlucky few that experience those symptoms as it usually works for most people, then he booked me in for a laparoscopy in January. I’m feeling a bit nervous now, I don’t really know what to expect with the laparoscopy and what to prepare for. Any pointers or suggestions from anyone else’s experience will be greatly appreciated. He told me to give up the Provera and just wait until the laparoscopy now so I will have to struggle for another couple of months before I may hopefully finally get some degree of relief.
Update: Hi everyone, I posted a couple of... - Endometriosis UK
Update
amazing you’ve been booked In for a lap. Deffo prepare yourself a little self care kit. Buy the most comfy clothing possible. Peppermint tea can help with gas pains. And just lots of support from any friends or family.
That’s good news, scary I know, you have an understanding consultant that he’s booked you in. Sorry it’s a couple of months and hopefully that will go quickly.
They try to do op and discharge on the same day but take a small overnight bag just in case you are later having yours. Mobile and charger a must in case you are hanging around or a book. The anaesthetist and consultant will see you on the morning and you’ll sign the relevant forms. The theatre staff are very experienced and usually really nice, it’s not as scary as you think. Peppermint tea for after will help ease the gas off after. If it’s keyhole they use a gas to extend the abdomen so they can see all round. For me I need the peppermint after. I was petrified the first time but have had five for various things and it’s not that bad, loved the deep sleep. 😂
Some loose to wear afterwards and plenty of rest. It’ll depend on what happens as to how long your recovery is, it’ll vary for all of us. The tiny incisions are deceptive to the brain though as to the fact you’ve had more done inside.
Not sure if that helps, don’t worry though 🙂 ask away if it’s too vague an answer
Thank you so much, you’ve provided some amazing advice! This is my first laparoscopy which is why I’m so nervous, I don’t know what to expect but I’m really glad that something is finally being done. I’m so sick and tired of suffering all the time, I’ll definitely prepare a little bag to be on the safe side. The consultant said I’ll speak to him first, then the procedure will be done and then he’ll speak to me again after just to explain what has been done and what is found during it.
That’s great the consultant will see you after, they don’t do that at one of the local hospitals unless the patient requests it.
It’s a horrible disease, but you’re on the road now to getting help which is a great step forward 🙂
I’ve been referred to a private hospital through the NHS which is why I believe they’re doing a little run through after the procedure just to let me know what was found and the self-care tips. It’s a terrible disease, I was on my knees at work from the pain today. I broke down in tears from the pain several times too, I’m counting down the days until the surgery now.
Sorry it’s so bad pain wise, it can get to you been there many times. What pain relief are you taking?
I’ve tried loads of things, at the moment Duloxitine, Oramorph, paracetamol, sometimes Diclofenac and Metoclopramide for nausea.
if you can do short notice let them know as well. You’re doing well to still be working 🙂
Thank you so much, I’m familiar with pain unfortunately. I had an unhealed fracture from 10-14 years old because the NHS couldn’t find it and fix it properly so I had to go privately and they found the fracture for which I went through physiotherapy and a cold laser surgery. I’ve been on codeine for it and co-codamol so that’s why I think I’ve built a tolerance to these painkillers and I’ve been unlucky with pain relief. I’ve been on mefenamic acid, co-codamol, naproxen and now diclofenac for the endometriosis but none have been working.
Sorry pain relief isn’t working for Endo, I haven’t found anything that works really well even morphine or cannabis (prescribed). Nefopam is a none opiate painkiller, I had that after first op.
Diclofenac suppositories work well but I was told use them sparingly because of ulcers.
Sorry you had a bad experience at A&E, don’t let that put you off going if you need to just stand firm. I haven’t seen your post but if it was for pain there are things they can do like intravenous morphine and they need to check it’s nothing else.
my consultant did excextly the same are you in Cornwall by any chance. ? The consultant I see is the best and he and a few other of his fellow colleges specialise in endo
No I’m not, I’m from London but my consultant is also a gem. He is quite clued on and has been really swift in the approaches that he has taken, he has given me the choices and has allowed me, as the patient, to make the decisions that I think would benefit me rather than forcing me into them which some do. I must confess, I did let him know earlier on that I have some medical knowledge as someone who works in a community pharmacy so he has given me the time to make choices based on personal and professional knowledge and experiences ☺️
aww good hun am glad xxx
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