A little hello

[BunMumof2]

Hi Everyone💗

Just a little hello from me - I've been suffering with Endo for 10+ years now and wanted to join a forum where other woman are going through the same frustrations as me!

I've had 4 Laparoscopy's (last one quite severe, where one of my ovaries was attaching to my bowel), been on the combi pill, had 6 months worth of Zoladex injections and in my second year now of having a Mirena coil.

...as you can imagine, my hormones are ALL OVER THE PLACE! & I am getting extremely frustrated as I am having more flare ups than I've ever experienced 😥

Currently waiting on an appointment from my Gyne consultant for next steps and possibly more surgery...

One thing that is really frustrating me, is the dreaded question of "have you had children yet". This really infuriates me, as I have had numerous occasions where a hysterectomy is offered as a solution. I'm 31 with no kids, and I'm not sure if I do / don't want them yet, it's not a priority. I'm in a happy relationship of 4 years and we are still enjoying life together! Why is this still acceptable to suggest?!

Someone please tell me there's a light at the end of the tunnel! 🙏

Sending love to everyone x

[SeventeenNineteen]

Hi there, I'm sorry you've been through so much. I can understand also that the question of children or having kids can be aggravating and for me somewhat triggering. The consultants don't always have the best way of approaching these things due to the limited time. But I think it's very acceptable for them to ask about it as the course of treatment if you want to retain your fertility may be much different than if you do not. Especially after 4 surgeries already, so much you have been through.

I was feeling very similar to you, not sure and not really making a decision on kids or not. Because of how my Endo has progressed that decision was made for me. If I was very committed to having children I would probably be devastated about it and angry if I didn't know all the options. So this is why they ask, so they can better understand what to suggest with how to move forward.

Take care of yourself and best of luck with your management of this horrible condition.

[BunMumof2 in reply to SeventeenNineteen]

Hey, thank you so much for your reply!

& don't get me wrong, I 100% agree it should be a question to be asked and spoken about, but the majority of my circumstances, its not spoken/asked in the right way. I think the conversation should be handled in a much careful way, rather than in one instance a doctor saying "Well, why don't you just try getting pregnant, and hopefully it'll help with your endo"...baring in mind I wasn't in a relationship or even close to one! I just think some doctors need more education on the disease. Gyne consultants do seem to have more knowledge/understanding...

I am really sorry to hear about your situation and the fact you didn't even get the choice! 😔

How are you getting on at the moment with your Endo?

I am actually worrying that mine is progressing the same way...I'm really trying to push for next steps with my Doctor / Consultant as my flare ups are now days apart, I feel like my lower abdomen is about to pop each time and I am getting a very weird sensation down my right leg and into my ankle.

Thank you for your kind words, wishing you all the best too x

Endo Flare up!