Hi all ,
I’m just looking for some advice . I just don’t know what possibilities are open to me . Long story short I am 35 nearly 36 and have suffered from Endo since about 17 and was disagnosed at around 22 . I have had around 3 laps now and my most recent surgeries were 2020- Lap and excision by Endo specialist. It returned within 6 months . I had a second surgery Sept 2022 same specialist consultant who is amazing . We opted for my right hand ovary being removed as this was where cyst was reoccurring . Surgery confirmed stage 3 Endo present around my right ovary (the one that was removed ) around my urethra, ligaments etc . It was a robotic surgery and he was pretty sure he’d got most of it .
Post surgery I had issues with bleeding and as a result my GP took me off the pill . This was also due to feeling faint and having headaches.
It’s now nearly a year since my surgery and my god the last few months have been dreadful . I’m in so much pain , I’m back on my heavy duty painkillers and now my career is being affected . I’ve been off work and some days I just can’t function . Pain with sex has returned and it’s really bad .
My GP arranged for a referral back and another scan etc . However , the most recent pain has been dreadful and I was really fed up . As such I have decided to pay for an urgent consultation with my Endo specialist . The thing is I don’t know what options are left for me . I’ve been on the injections to bring on chemical menopause and that did work , although very expensive and was only able to be on them 6 months. I was on the coil and it was awful for me . I’ve been on a variety of hormonal pills since I was 15 .
What other options are there for me ? I’m considering asking for a hysterectomy but I don’t know if there’s any point . I’m in agony and I feel I can’t do the things I use to love . I’m in pain and I’m having to take a loan out to pay to go privately , as waiting 18 months just for a consultation is not an option . What treatment options are available? I’m at a point in my life where is just want to be as pain free as I can . I don’t want children (I’m in a gay relationship and we don’t want children - if we did we would adopt ) . I just want my life back . Would another ovary removal be an option or a hysterectomy? I’m just at a loss . Any advice or thoughts would be appreciated!
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