Looking for info. Just got diagnosed and ... - Endometriosis UK

Endometriosis UK

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Looking for info. Just got diagnosed and yrying for baby 2

FireLizard21 profile image
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Hi All, I've just been diagnosed with endometriosis but had a useless consultant who basically gave me no info, told me (when pushed) my options were simply "surgery or do nothing", had no advice when I said was trying to get pregnant and when I asked if there was any more info basically told me to Google it!! Not impressed.

I'm 40, have a 3 year old daughter and am trying for a second baby (about 7-8months trying so far). I have no idea if I should be rushing to get surgery and if that will increase my chances of getting pregnant again, or give it more time (although as I get older and the endo may get worse is it just getting less and less likely?). I guess it can't be that far progressed as I got pregnant quickly last time (after an initial miscarriage) but the thing I'm finding hardest is the total lack of any info. Any advice really appreciated, or suggestions of where to get it (most places just tell you to dpeak to your GP, who then refers me to the useless consultant).

Thanks in advance!

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Camodo_Cat profile image
Camodo_Cat

Hello, Sorry to hear you weren't given a lot of information to help you make decisions i.e. fertility. I have endometriosis but luckily didn't have trouble conceiving and I know others have the same experience. Endo is a very personal thing which seems to affect people in all sorts of ways depending on where it is and how rampant it is. How were you diagnosed? Any idea on location or severity? It maybe worthwhile having a consultation with someone else who has a good reputation who can go over your history and tests to provide better advice.

As for resources, endometriosis UK charity have helpful information to start your journey. They also have local groups set up in some areas so hopefully that may be an option for you. Unfortunately endo is an illness which needs a lot more research and funding, so often to find answers or ideas takes a lot of reading on places like here and scientific journals etc.

Just know you are not alone on this journey, there are a lot of us out there and I hope you find the answers you're searching for x

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