Endometriosis fatigue

[Suburbia]

I have been living with endometriosis for many years. Recently the fatigue seems worse than ever. Has anyone found anything that helps with this?

[Stephanie87]

Hi Suburbia. I feel you on this. I'm constantly exhausted / fatigued, moreso around my period (which I only get 2 weeks between nowadays 😑). I was told by my gyne that fatigue is not related to endometriosis, which I don't believe for a moment. I havnt found anything that helps yet, hoping it will subdue after the surgery I am waiting for.

[BloomingMarvellous in reply to Stephanie87]

The gynae politely is talking rubbish. The endo tissue produces additional cortisol , it’s receptors resistant to progesterone and insulin in many of us, maybe resistant to other hormones too … It’s inflammation maybe the result of or /worsened by chronic infections etc etc. It is a hormone modulating disease and likely autoimmune… it makes you bloody tired.

[Stephanie87 in reply to BloomingMarvellous]

I thought he was talking crap, but figured he must know what he was on about. TBH I really didn't like him, he made me feel so uncomfortable, it was an awful experience. I was going to chase it up with my doctor, I don't know why I havnt yet, more fool me!

[BloomingMarvellous in reply to Stephanie87]

Huuummmm. They are recognised associated problems ie “chronic fatigue/fibromyalgia “ which they often put in separate boxes. It’s worth poking about in the studies sections of “Heal Endo “ book ( Katie Edmonds ) for the double blind studies on endo and endo tissue functioning.

[Suburbia in reply to Stephanie87]

thanks Stephanie87. Hope the surgery goes well.

[BeTheSunshine]

I bought some energising effervescent tablets that you dissolve in a glass of water, just like multivitamin tablet really which gives me a little boost. Not a solution but might help a bit.

[Suburbia in reply to BeTheSunshine]

Thanks BeTheSunshine. I will give it a try.

[BloomingMarvellous]

I found dealing with the ongoing inflammation and improving breathing and core strength the best way to help with the chronic fatigue . Try Heal Endo by Katie Edmonds for a good old explore around possible supportive self care and hypopressive breathing for core recovery. My top go to for pain and inflammation reduction/improvement too for leaky gut is high quality fish Omega 3 ( sorry plant version is NOT the same ) .

[EmB18]

You might have already done this, but I'd ask your GP to do blood tests to rule out low iron, B12, folate or vitamin D as that might be making you extra tired on top of the endo fatigue.