I wish the pain would just stop

[bee109]

So my lap last year was negative - the consultant was in their for 15 mins and said everything looks healthy, however felt it could still be endo and offered the menopause as a way to manage my symptoms. All my bloods are normal and ultrasound was also normal

I had been bumbling along with relatively low levels of pain but the last 2 months have been exhausting. Constant pain in my right pelvis, crippling period pains, my husband and I can barely have sex - as i tend to start crying because its so painful - which in turns makes me not even want to try - we are also wanting a baby, so have all the emotions alongside that. And the tiredness - all I want to do is lie on the sofa and sleep.

My new GP has been fantastic playing around with painkillers and offered to send me for MRI and CT to rule out any other concerns, but I'm fed up, I just want to live a normal life, have sex and have a baby.

I feel like i'm making it all up - that maybe the pain is in my head and im being dramatic

[Lofty1589]

15 minutes isn’t long enough to have a proper look around. Did the person doing your lap have a special interest in Endo or were they just general gynae?

[bee109 in reply to Lofty1589]

General gynae - i was heartbroken after - the nurse looked very confused why i was crying when it was negative!

I posted on here after and everyone said that general gynae frequently miss it!

[Lofty1589 in reply to bee109]

They do! I had a lap in 2019 by general gynae, told no Endo. Pain didn’t get any better and fast forward to August 2022, diagnosed with Endo and have a nodule on my ureter! It could be microscopic but a lap should take at least 45 minutes, looking around everything. Sounds like they just looked at uterus/ovaries areas and not everywhere else!

I would seek a second opinion!

[Dee_EndoUK Moderator Endometriosis UK]

Hi bee109

Please be assured that the pain is not all in your head and that you're not being dramatic. The emotional rollercoaster is absolutely draining - not only are you pushing for a formal diagnosis, you're also considering starting a family and are suffering significant pain. Please be kind to yourself - you're going through a lot and we're all here to support you.

It's reassuring to hear that your GP has been taking your concerns seriously and it would be worth considering going for an MRI (as long as the sonographer is experienced in this area - look at Lindle's post on this which contains some excellent information)

In the meantime, it would also be worth researching ways to to manage your stress levels. You can find some suggestions at endometriosisi-org.uk/pain-.... If you scroll to the bottom of the page you can download the Endometriosis Treatment Pack, which will give some suggestions under 'complementary therapies'.

Take care, wishing you all the best x

[TogetherWeAreStrong Moderator Endometriosis UK]

bee109 when I read your post, your journey so far and how you have been left feeling. like thoughts that your pain 'being made up' or 'in your head', I felt so sad as, I too have felt the same and also had 'good' friends who have suggested that this really is mind over matter, as there's 'no such thing as pain'. Good news! You won't get that here! There's nothing better I could say or recommend than what Dee_EndoUK already has.

Everytime you post, you contribute, this is community at it's best.