It really does frustrate me, and I get this a lot. Some family/colleagues/friends think and call my this..Just wondered if anyone else gets this?
I know I should just take it with a pinch of salt but it frustrates me because sometimes I feel like I am. Due to being constantly at the doctors because of my Endo. I've just been told I might have PCOS and PID possibly. And currently I have a UTI.
Just feeling low and to be honest just using this to get it off my chest
Endometri ! Roar! This is your forum. I understand what you are saying!
Thank you, I'm roaring! Stay strong
ignore them, they aren’t going through the pain etc every day. I felt people were more sympathetic towards me when I had a diagnosis as I lived a while not knowing what was wrong with me. I lost friends because of it too x
Thank you, I was diagnosed back in september through a lap and they managed to remove some endo but some people don't fully understand the pain it causes both physically and mentally. Sometimes I just wish they could understand and I feel that these types of people will only understand once experienced by themselves but I wouldn't want to wish this pain on anyone! So I just need to try and not worry or care about what some people think! Stay strong xx
it doesn’t just cause pain! 🤦🏻♀️! I’m sick of the painful period rubbish! No mean to scare anyone, but it needs to stop being classed as a benign, painful disease! Thankfully, for most people it is! But for some this really isn’t! There’s people with disease so advanced that they can’t even find surgeons willing to cut it out! I’m such a patient! It wraps around ureters and slowly kills kidneys! Bowel! Causes obstructions! Had 30 impactions in 6 years!.. All this just to increase your estrogen levels to feed itself, which also causes various cancers!.. It increases your risk for infection and then increases your risk from sepsis!
There’s plenty of information online to educate your family if you look past the NHS mantra of ‘it’s a painful period!’….
Do people think Drs cut it out and prescribe medicines used to treat cancer because of pain? If that was the case, why don’t they amputate limbs for arthritis patients to end ‘their pain!’ 🤦🏻♀️! The surgery for painful periods can range from minimal to major! I’m pretty sure no Dr would give a patient major surgery if they really thought it was just pain 🤦🏻♀️. But alas, we’re clearly hysterical 🤣
Best of luck!
I didn't get diagnosed with endo until I was 47, paid to see a private specialist. Up to then even my GP said there was nothing wrong with me, various GPs and consultants suggested I was just making a fuss about normal women's problems and getting run-down because I wasn't looking after myself.
endometriosis and resulting adenomyosis can REALLY make one's life hell
1. A failure to find cause by a medic might mean those concerned turn this failure outwards and project it on the patient as being the issue.
2. An inability to comprehend or imagine pain ( of any sort…) can mean those concerned turn that inability outward and blame the person concerned.
3. Then there are those who feel hapless in the face of it and inadequate to help. They can appear to weary of us because like us they just get over faced with it - only they don’t have the pain and look to shut it off .
Both 1&2 are failures to understand another is separate from you and that their experience isn’t yours. Your experience can’t be true as far as they are concerned. Folk find it hard to encompass the “ invisible “ into their lives and accept the reality of another’s pain. They can then even start denying it. It can make you feel bonkers. Anyway up it’s not you. It’s them. Their problem. Whatever you do own your reality, hear your inner voice , believe what it is saying. Only then will you really begin to unravel it. Pain caused by the inflammation, the physiological changes, the centralised pain issues that come with it they are all absolutely 💯 real. We are not in the business of converting the unbelievers ; we’ve frankly got more than enough on our plates let them do their homework for themselves .
3 however are folk who if we let them know what is helpful for us when things are tough can be lifesavers (and we a positive being for them.) Be that having a tea, taking a short walk with you, popping over for a film evening - something that isn’t about the disease but uplifts you at the darkest moments. Feeling they can be a force for good, care, be useful is a tonic to you both. Love wins.
Thank you, luckily my partner is very supportive of me and he helps me a lot of the time. It's just when I get those snarky comments that drive me mad and upset me. But I need to learn to ignore them.
Surgery info - Who do you call?
New and not getting anywhere
Tips on getting body to rest?
Phone call
PID? not getting better - antibiotics 
