Can an IUS help with limb numbness?

[JustPain2]

I have endometriosis and adenomyosis. It's been a year and a half since the chronic pain began, and it's only got worse to the point I can't work full time any more. I live alone, walking is very painful, my personal hygiene has deteriorated, and I'm basically trapped in my own home.

Doctors have tried different combined pills, the mini-pill, and norethisterone, but nothing has helped. Norethisterone was helping a bit but it gave me a very bad rash and was told to stop it.

The last time a gynae saw me was in November, he was supposed to see me again at the end of January to decide whether to go for surgery or not, but due to the current state of the NHS, they won't be able to see me until mid April.

My problem's getting worse by the day, but no one seems to care. Now not only my legs feel numb, but my arms do as well. The only thing they're offering me at the moment is a Mirena coil.

Does anyone know whether an IUS can help the numbness? I've thought about going private, but the decision is very difficult as the issue has affected my ability to work and I don't know whether I'll still have a job next month.

I was supposed to get the IUS next week but they forgot to add me to the waiting list and now I have to wait three more weeks. I'm very frustrated.

[Lindle]

Have you had scans - how was your endo diagnosed and do you know what severity/stage? And are you in the UK?

[JustPain2 in reply to Lindle]

I've had two ultrasounds, both showed endometriomas. Then I had an MRI scan which showed the same plus adenomyosis. No one has told me what severity/stage this is, but I'm seeing it getting worse by the day. And yes, I'm in the UK. I paid for the MRI scan to try to rush things with the NHS but it's still very slow.

[Cailleach]

Obviously I am not a gynaecologist, but …

It seems to me that no one has clarified whether the numbness you are experiencing is related to the endo? It could be I suppose that the endo is somehow causing pressure on your nerves but what you experiencing seems quite severe and affecting arms and legs.

I can’t see that the coil is going to help this to be honest, though of course it could help with the pain.

Can you contact your GP for a review of all your symptoms? I think that should be done urgently given how badly this is affecting you.

For your issues with your work, it really depends how long you have been there, and what their policies are. It is worth contacting a trade union/ Citizens Advice Bureau or ACAS for advice.

I hope things improve for you soon.