Help needed

[Bexb89]

Hello everyone, I'm bex I'm 33 with 2young kids. I got diagnosed with a rare severe case of endometriosis 6 years ago. I have had endless scans tests medicationsand even an operation to remove a large endometriotic lump removed. For 6 years I've been in crippling pain all around my uterus area my bum,legs and back. I have horrible severe spontaneous bleeding. Slight movement in certain ways sneezing coughing or just relaxing would trigger the horrific pain. I was put on zoladex injecti9ns for 10months in preparation for a full abdominal hysterectomy, which I had done in October 2022. But unfortunately now all the symptoms had previously apart from the bleeding has resurfaced. I'm happyto tell my full story! But I need some help and advise I'm struggling physically and mentally. Thank you in advance, bex xx

[Cailleach]

Hi, really sorry to hear this, it must be so hard for you, especially managing with the kids, and no doubt you were hoping the surgery would sort everything.

I can’t really advise except that you need to ask to be seen again by the gynaecologists- I presume it was a specialist BSGE centre where you were treated. Your GP should be able to help you with pain relief and the BSGE centre may have a pain specialist as well. It is certainly not unknown for people to find pain persisting after menopause / hysterectomy. Have a search through previous posts here for some examples.

Sadly you might find that the gynaecologists are reluctant to see you again as your endo is supposed to be ‘ sorted’ so you may have to push to get treatment. I hope you get some help soon though xx