Hi everyone. I got my diagnosis in December after emergency surgery as they thought a cyst had twisted my ovary - turns out I was having a really bad endo flare up!
I had been going to the GP for 8 years with pain and was constantly brushed off with ‘it’s your age group, I see loads of girls your age with the same thing’ or ‘that is tender’ but doing nothing about it or not referring me to anywhere.
We are in the process of planning our wedding (April 2023) and I just feel sooooo down about this endo diagnosis. I don’t know what stage it’s at other than covering my left ovary and on my right uterosacal ligament. I’ve been told “get pregnant it’ll help” but I also don’t know if I can get pregnant/how hard it’ll be etc.
When they discharged me I was just told: “you’ll need more surgery”. 👍🏻😭🤦🏻♀️.
Anyone else just feel bleughhhhhhhhhh? Or is it just me?
Written by
EndoPash
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Hi EndoPash and welcome to the forum. Unfortunately, your post is not suprising and how you have been left feeling so unsure and bleughhhhhhhhhh, it's not just you.
It is great that you have been diagnosed but not that you have no idea what the next steps are. I am 46 and was diagnosed when I was 19 and have been consistently told that if I got pregnant it would help. I have always had an issue with this 'advice'.
Congratulations at your pre-coming nuptuals I am sorry that this issue is overshadowing it. It's not long now and I would personally love to know where you are at!
There's many a day and feel bleughhhhhhhhhh, so please trust me it's not you. There's so little you can control with this condition (and life in general) but if you have been told you need more surgery:
Do you have a follow up appointment? If not please contact your GP for an update, or if you have the contact details of your Gyne department then go straight to them.
Have you been prescribed some pain relief medication?
8 years is a long time to have these symptoms and to suddenly have a 'name' to them must be quite shocking, do you feel that you have the appropiate information, coping mechanisms? Do you feel you have the understanding of your friends, family, employer etc?
Endometriosis UK and all of us endo warriors are with you on your journey now and we do understand, have a little look at what we have coming up and also the additional support to this forum we offer:
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
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