Education, education, education . I am gobsmacked š¶ and feel that as a group and organisation we have each otherās backs. I am left reeling by what might be, if it were less serious, comedic. Common problemās on our feeds is the lack of awareness and straight up education of ourselves, those around us , schools, workplace , medics either GPās or hospitals, and I could go on. A really frequent area for despair is that women without endo from Mumās to friends donāt know, canāt empathise, donāt consider endo and all its widespread effects. Itās frankly a disaster and only adds years to getting a diagnosis etc . Like the menopause info and care the silence is deafening. And surely, but surely itās time to put a full stop to this utter lunacy.
Why am I getting so fired up though ? A friend who has a 10yr old daughter who is being sent to a puberty period workshop associated with her school . So far so good. Mum goes too. Mum like myself has had nothing but a tough tough time with her cycle and itās a subject of conversation and frustrations in dealing with the usual plethora of blank faces and incorrect info or dismissal. Mum has been directed for an āonly positive period teenage experience ā . Which sheās stuck with. She doesnāt have. They are only going to be discussing āpositivesā.
I understand , get the desire not to induce a climate of an anxiety or unnecessary fear. Totally. My beef is women here are just colluding with the story of the perfect female experience here from the outset without any space for a conversation empowering these girls to have a conversation and begin to navigate when things arenāt okay. We are allowing the fairy tale to be perpetuated and thatās not okay in my book. The silence is a huge part of the problem. Knowing when things perhaps arenāt like the other 80% of womenās experience and going āthis is a thing and this is what you need to do ā IS in my book a really important, powerful thing to share with the upcoming youngsters. Demystifying it with us from the start is a whole big bunch of the fight over and done with.
It left me so sad š that still now after all the struggles for womenās welfare and rights has being going on for soooo long that these girls are being told happy ever after tales covered in glitter as a way to map their future life. Worse still itās by women denying a whole aspect of this natural process for some women is a large part of the problem. Somehow this needs to shift from the start up.
Rant over but surely early education is the force for change ????
Severe Period Pain but no diagnosis 
What is a ānormalā period vs. An endo period?
First period experiences after Laparoscopy?
Sharp pain during period 
So agree, thatās socking they arenāt empowering girls with the truth. There is an amazing opportunity for real truthful education. I hope your friend can be strong to enforce a change with their approach.
Positive thoughts only happen if you have all the truth. Please tell your friend that thoughts are with her and I hope she can get this class to not put a āspinā on periods and whatās normal and what isnāt.
weāve discussed as she was spitting but sheās not the leader on this. Itās certainly something to bring to the table though.
Whoever is leader shouldnāt be š
š¤ they arenāt for much longer. Maybe thatās what they did, but you donāt teach what you did, you teach the truth.
all hail truthspeaker
Hi sorry š I just donāt want anyone to go through what I did. I was told by a GP when 18/19 to have a baby, never went back, put up with bad periods/pain etc and that allowed Endo to spread. I was diagnosed in 2020 at 51 with a lap after things got really bad. They think there is nerve damage, but Iām also trying to establish if there are still adhesions around the small bowel.
Thereās so much they need to learn, what classes as a heavy period? Gynae told me going through two/three pads a day is heavy. I think GPās should ask any girl/women how their periods are.
Iāll jump off the soapbox now š¤£
Carry on Moon_Maiden ! Our stories are similar, the inappropriate treatment suggestions and dismissals likewise. It took 44yrs for my diagnosis and to learn I wasnāt fruit loop, lazy, or had an overactive imagination ( to quote one consultant after bleeding out so much was hospitalised for weeks after an awful late miscarriage and vomiting so much over 12 weeks had gone from 91/2 stones to 6 1/2 he came out with āone day youāll find this is all in your head ā) . We canāt rewrite our experience but we can enable others so this madness stops. In my book the Soap Boxes need to come out all over the place. ššš
My GP would be insane to suggest itās in my head again š¤£š¤£ he knows Iād knock that on the head, but neither will he give a diagnosis now. They were inadvertently told in a Gynae letter about the complaint I made to the hospital and our meeting. I got the letter taken down but the damage was done. My medical record is horrendous now as a Iāve not let anything lie and keep on fighting, just in the hope they donāt do it to someone else.
How a consultant could say that to you was utter disgrace, it would be impossible to make it up. So sorry you spent so long battling. Thatās a lot of weight to lose, have you put it back on?
I lost 30kg in the end 2019 beginning of 2020, no one can still tell me why or why I canāt eat much. Gastro are just as useless. š¤¦āāļø
It would make headlines if groups went to A&E at the same time over the country. Can you imagine the stir women in pain would cause š that would get Gynae out the woodwork! šš¤£
Ha , sadly it played havoc with my weight regulation which for the first time ever went over and itās been an issue since on and off. I know itās the change in mobility and hormone balance so it needs a firm hand. Sigh. Thank you for reaching out - Each of us has a story hard to stomach and in choosing to speak out I hope it becomes a light instead carried forward to say it can be different. At least that way a positive comes out of it and it makes the situation more bearable.