I need help : I have stage 4 endo and I’m... - Endometriosis UK

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I need help

Snooksie_29 profile image
4 Replies

I have stage 4 endo and I’m awaiting my second surgery with a bowel and bladder specialist. In the past 2 months I’ve experienced severed sickness and diarrhoea abereaging every 7-10 days and it typically lasts 3 days.

Anyone had this? An on call dr tried to tell me it could be down to anxiety today 😢

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Snooksie_29 profile image
Snooksie_29
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4 Replies
Cailleach profile image
Cailleach

It could be a lot of things, anxiety is one of them. I am not sure if it will be endo related, but I think you should be getting investigated, that sounds quite unpleasant and debilitating. Have you been referred anywhere, had bloods checked, stool sample sent off etc? I think your GP should be pursuing this.

Hope things improve for you.

Snooksie_29 profile image
Snooksie_29 in reply to Cailleach

I’m under a new specialist who is planning my next surgery for next year with a bowel and bladder specialist, I had a mri in October to help him plan the surgery but not had the results back for that yet. He put me on hrt in October too and I think it’s that causing the sickness and diarrhoea personally l. They said the next step is zoledax injections leading up to the surgery 🤷🏻‍♀️

Cailleach profile image
Cailleach

That is good that you have a clear plan for the surgery but I am guessing it is some way off if you have not started Zoladex yet. Can you get them to change/ adjust the HRT though and see if that helps your symptoms, and/ or look at other causes for the sickness and diarrhoea? That is very frequent and it just dismiss it as anxiety seems wrong to me. Hope things work out.

Snooksie_29 profile image
Snooksie_29

my gp has called and booked a face to face for Thursday she think it could be the nuproxen causing the sickness 🤷🏻‍♀️

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