Mirena and Desogestrel at the same time?

[Sapphire2021]

I have had the mirena coil since the middle of September. I havent stopped bleeding at all since and i still get alot of pain.

My endometrioma has also grown from 4cm to 7cm in this time.

My gp is referring me back to the hospital but said in the mean time to start taking the pill as well.

Has anyone else taken this as well as having the coil?

Has it helped pain and stopped the bleeding?

[Lindle]

The coil mostly acts locally within the uterus and it is common to take a systemic progestin at the same time. But it is unlikely to be the coil that has increased the size of your endometrioma. Endometriomas are usually a sign of deep rectovaginal endo. Have you had an experts scan to.look for deep endo?

[Sapphire2021 in reply to Lindle]

Hi thank you for replying.Ok that makes sense. Hopefully taking the pill as well will help more.

I have had mri's plus surgery already to remove an endometrioma plus endometriosis in other areas last year.

The hospital discharged me back to my gp after that. I think i will do some research today for a specialist within my area and see if the gp will refer me to them instead. Is that how it works?

[Lindle in reply to Sapphire2021]

Are you in England?

[Sapphire2021 in reply to Lindle]

Yes i am and i have had a look on the bsge website and my local hospital is on there so i will call my gp today and ask to be referred to the dr whose name is on there.He wasnt who i saw originally when i had my surgery last year.

The surgeon who i had last time has refused to operate on me again so i already know it wont be him anyway.

[Endoff]

Since the summer I am currently on both the Mirena coil and taking desogestrel. It has helped with pain after a flare up of symptoms, although I already wasn’t bleeding due to the Mirena coil (had it fitted a couple of years prior during a laparoscopy) Hope it helps. Best wishes.

[Sapphire2021 in reply to Endoff]

Hi, thank you for replying. Glad to hear it is helping you with pain.

Fingers crossed it also helps me. The bleeding is actually less today so im hoping thats the start of feeling more normal

[Mony_1885]

I’m not using both but I’m taking desogestrel. I get a lot of light to medium spotting which is unpredictable and relatively frequent although the frequency does seem to be reduced recently( taking since April) . I turned down the coil because it is only local to the uterus and may cause more pain. I have been virtually painless on desogestrel so far so hopefully it will help you too and reduce bleeding in conjunction with the coil x

[Sapphire2021 in reply to Mony_1885]

Thank you for replying.The bleeding is so annoying isnt it?!

I am currently aneamic because of it all so feeling pretty rubbish.

I am now very hopeful about it stopping the pain though after seeing yours and the previous reply.

Don you just take it continuously with no breaks? x

[Mony_1885 in reply to Sapphire2021]

yep, every day no breaks.

I do worry about blood loss but it’s been months and I’ve been ok and it’s totally worth it vs. the immense pain I’d be in instead. I am always tired though so maybe I’ll check my iron levels.

Do take care and let us know how you fare with using both. Good luck x

[Sapphire2021 in reply to Mony_1885]

Definitely, id take the bleeding over the pain any day. Thanks so much. Take care x