Endometriosis of the spine??

[Sholla]

I'm really not sure about this guys all l know I'm getting some sensations in my spine and tingling/prickly feelings elsewhere. Can anyone relate???

[Sunnydays154]

hi yes, I am experiencing tingling on the soles of my feet and inner thighs at times and back of my left thigh. I had had sciatic endometriosis but had that removed two years ago, but I am wondering if it has now returned. What are your symptoms?

[Jgp1 in reply to Sunnydays154]

Hi,can I ask how you were diagnosed please? What symptoms did you originally have?Thank you

Hope you are much improved now.

[Sunnydays154 in reply to Jgp1]

I had sciatic type pain in thr right side in my hip and over years it eventually went down my leg and nerve pain in my foot. I could not lift my leg up very high when laying down on the side. Then I developed foot drop- I can not lift my foot up. I had ace wrap mris which shows wastage on my glutes and a mass on sciatic nerve , a biopsy was taken of the mass which confirmed endometriosis. I had surgery to remove the mass and had endo in other places. My foot had never recovered thr nerve has died as I I wasn’t in much pain. It was all fine for about two years now I am getting g tingling feet on both sides and pain down left thigh. I had mri but nothing is showing - I know it does not always show up. I do not know if it is endo , I had it in my glute and they left that in so maybe it has spread.

[Sholla in reply to Sunnydays154]

I have pain in the centre of my back tingling across my back, tingly toes, back of my thighs and sometimes fingers its all very random but tingling is definitely nerve related, so worrying.

[Jgp1]

Thank you for sharing.I am getting all my results from my MRI next week but GP have said a compression on L5/S1 disc etc but other symptoms are suggesting endo to me aswell.Interesting you had endo confiby a biopsy I didn't know this was a thing so I will definitely mention that at my appointment. Feel it's one of those where we need all consultants in the same room at the same time etc!!!

Take care xx