Fear of finding nothing: After over a year... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Fear of finding nothing

310717 profile image
5 Replies

After over a year on the waiting list, I finally signed my consent forms for surgery last week and I’m just awaiting a date now! I’m SO excited to finally take this next step, but I’m also really worried that they won’t find anything!

it seems really common that we get gaslit into thinking our pain isn’t bad enough, ironically mainly by doctors, and it’s frustrating when you don’t have anything to compare it to. My worry is that, if they don’t find anything, I won’t have that validation and it’ll be back to square one☹️

Did anyone else have this concern? That maybe it’s all in their head and they’re 99% sure the doctors won’t find anything?

Written by
310717 profile image
310717
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Rocket14 profile image
Rocket14

Yes I did even as they wheeled me into theatre. People ways saw me with a fake smile on my face even when I was in horrendous pain. Its so hard for people to understand unless they have endometriosis. Well my consultant found endometriosis all over my organs, which were also stuck together, in the womb lining and a tumour in my bladder. I was so happy that he found all this, I knew something was wrong, but some others around made me think it was in ny head. Always asking why it was taking so long to get answers, why areny you just having a hysterectomy, blah, blah, blah. Trying to explain my consultant had a treatment plan and that would be followed to the letter. Now I'm waiting for full hysterectomy with zoladex injections, tramadol to help with the pain. So all I can say to you is listen to your body, rest up when you can and believe in how you feel. Endometriosis and all the other symptoms we suffer are horrendous at times, but we're strong. Good luck.

310717 profile image
310717 in reply to Rocket14

thank you, this is so reassuring. I hope everything gets better for you! 🤍

Vim84 profile image
Vim84

I am exactly the same. I have mine booked in for the 19th and i was considering cancelling it for exactly this reason but ny husband talked me roun. Hope you get it soon

310717 profile image
310717 in reply to Vim84

I’m so glad i’m not the only one! I hope everything goes well for you🤍 I’m now booked in for next month

Vim84 profile image
Vim84

Hope it goes well!

You may also like...

Finally things are in motion for laparoscopy! Scared they'll find nothing, then what?!

So I finally got my appointment with the specialist. He asked me some questions, gave me an internal

Just got my laparoscopy date, how do I deal with the fear of them not finding anything?

but I got my date. 1st of December. I'm excited about the possibility of them finding something and

Any advice for my first laparoscopy? Fears and worries not going to find anything

scared and worried now if they do find something and I do have endo or they don’t find anything at...

Laparoscopy didn’t find anything?

but they didn’t find a thing and I’ve had no explanation from anyone. It’s really upset me because...

Nothing found in Lap.

here expressing my worry that they wouldn't find anything and turned out my worry came true. I had...