advice and support needed: Iv been having... - Endometriosis UK

Endometriosis UK

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advice and support needed

Leon1o profile image
2 Replies

Iv been having ongoing investigations into my pelvic pain including laparoscopy and they still don't know what is wrong with me and I was fine slowly slugging along to get second opinions and more investigations but on Sunday I had a sudden onset of pain leaving me unable to walk much nad throwing up and constant nausea, dizziness and fainting. A and edid nothing and said to contact gp to get a second refferal to pain clinic and try see if I can get an earlier appointment than the 8th with gynae. Spoke to my gp who said she would od that and up my gabapentin but i went back to the Dr's surgery today and the person that saw me said my gp had done a second refferal to the painclinic but on mention of contacting gynae so the lady I saw has written a note to my gp and given me a different antisickness to try and took my bloods again but I won't knowthe results until tomorrow. I'm in so much pain and feeling defeated and I'm begging them to do something else send me in for another scan or something.not only can I not cope but I can't even look after my kids and my partner is getting in trouble at taking so much time off work, all child care near me is fully booked and the only family near us don't want to help out. All of this I'm talking about with my gp and I get out and my husband has a go at me for being a push over and not getting them to do more. He has just sat and napped all day (it's his day off) rather than trying to get on top of the house work that I can no longer do, my 7 year old is coming home and doing everything. I just can't take it anymore, I'm in so much pain and I'm not getting any help from anyone not even my husband. I just feel so stuck and wanted to reach out to people that might understand or maybe just have advice on what I can do to try get this pain to stop. Sorry for it being so long and any typos, iv really struggled to type this

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Leon1o
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Cailleach profile image
Cailleach

I don’t really have any advice, just wanted to say how sorry I am you are going through all this and don’t seem to have much support. I hope the increased Gabapentin and the anti-sickness meds will help. Can you phone GP surgery without having to go in and ask them to push for the Gynae appointment as well? When you are having a really bad flare up everything can seem hopeless. Hopefully this will settle down soon. Xx

Leon1o profile image
Leon1o in reply toCailleach

Yeah I already spoke with my gp about pushing for the gynae referral and she said she would but when I went in on Thursday for them to check my bloods again because of me being sick so much the lady said that my go had just taken note of my gynae appointment date but not actually pushed for it so she's written a note to my gp to actually do it. I have actually reached out to the mental health team near me and they have helped me alot and put some things in place going forward so hopefully things will start to get better for me, thanks for your support x

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