New to Endometriosis

[Cherry245]

Hi, I am new here

I have just been diagnosed with endometriosis and I have been battling with the pain for nearly 2 years now.

They have advised me to go in for another surgery which will be my third...

I am feeling very alone and lost right now, any advice or support on how to live with this illness would be appreciated.

I am only 19 and I have no other friends or family with the same illness so I feel like I'm going in alone.

[Katienoonan86]

Hey Cherry,

I’m so sorry you’re feeling alone, I remember how I felt when I was first diagnosed - I couldn’t find any advice or support. The Endometriosis Foundation have an online support group, full of people experiencing very similar things to you, they also run a live and interactive fortnightly support group where you can share all you’re worries or concerns. You can find the link to next weeks live support group and also the online support group here -

facebook.com/groups/theendo...

Look forward to seeing you over there 😊

Sending lots of love xx

[LivWilliams27 Moderator Endometriosis UK]

Hi Cherry245,

I’m so sorry to hear about how you’ve been suffering with endometriosis – it sounds like you’ve had a really difficult time.

If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/helpline.

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/find-a... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.

I hope this helps and i wish you all the best!

Liv xx