URGENT! HELP please. Kidney Pain - Endometriosis UK

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URGENT! HELP please. Kidney Pain

Sham_R profile image
4 Replies

I have stage 4 deep infiltrating endometriosis and adenomyosis with multiple endometrioma and lesions in my bowel. All my intestines are stuck together and I have been told they my endometriosis is a spread to my kidney a little as well.

Since last night i am getting a dull pain below my rib and hurts really bad when I move. Has anyone gone through a similar thing or might have any advice. I am at work and it feels awful...

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Sham_R profile image
Sham_R
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4 Replies
Lindle profile image
Lindle

I'm so sorry you are suffering so much. I assume you are being treated in a specialist endo centre and with anything new like this you would be best to contact the consultants treating you. Are you awaiting excision?

Sham_R profile image
Sham_R in reply toLindle

Thank you replying Lindle. Yes, I am being seen my endo specialist, but it is impossible to get hold of the doctor. I had a ruptured cyst in Nov so they did and emergency surgery, now I am waiting for a proper excision.

Lindle profile image
Lindle in reply toSham_R

Do you have the contact for the centre's specialist endo nurse? If not they are named on the BSGE list. It may be that you have endo affecting your ureter as this can go on to affect kidney function so keep on pressing or otherwise I would ask your GP.

Sham_R profile image
Sham_R in reply toLindle

Thank you so much, I will do that.

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