Aching legs : Does anyone get aching legs... - Endometriosis UK

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Aching legs

me94 profile image
me94
16 Replies

Does anyone get aching legs regularly?

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me94 profile image
me94
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16 Replies
Heartof3 profile image
Heartof3

Yes 😖 i feel like a kid with growing pains again 😞 x

me94 profile image
me94 in reply toHeartof3

Me too. it has only just started happening recently and it is frequent. Do you know if this is a symtom of endo?

Heartof3 profile image
Heartof3 in reply tome94

Yh i read it's referred pain.My pain Litrally feels like a suspender belt of pain, around my back, womb & down my legs to my knees. Really deep and achey 😖 x

me94 profile image
me94 in reply toHeartof3

Ah I see. Aww not good. Mine is lower right pelvis, lower right back and achy legs but more in my calves. I do get some pain free days luckily x

Heartof3 profile image
Heartof3 in reply tome94

Bloody awful isn't it 😞 I have sharp pain around my right ovary too.

My changes to stabbing when ovulating and burning when on period.

I constantly feel like i gave pressurein my womb which is made worse by any activities i try to do.

Such a battleisn't it x

me94 profile image
me94 in reply toHeartof3

Yeah same for me. Do you get pain free days? Is your mainly right pelvis? X

Heartof3 profile image
Heartof3 in reply tome94

I do but by the evening it starts again.Always worse when ovulating & around my period.

Defo mainly on my right.

I'm due to have a laparoscopy by next month.

X

me94 profile image
me94 in reply toHeartof3

That's exactly the same as me. Sometimes in the day I don't have it and then all of the sudden in the evening it comes on. Yeah always worse for me when ovulating and period then a few other days. Yay that's good pleased you have yours soon and fingers crossed you find some answers 😀 x

Heartof3 profile image
Heartof3 in reply tome94

Always gets involved dnt it 😞 Aww thank u.

I hope u get amswers real soon too.

Always here if u want a chat x

me94 profile image
me94

Yeah it does 😫 mine will be ages away. only been on waiting list for one month and got told could be a year. Thank you I appreciate it so nice to hear other people experiences so you don't feel alone. I'm hear if you ever want a chat also 😀x

AC357 profile image
AC357

I was having aching leg issues that came and went and pelvic pain, horrific period pain and eventually later had more symptoms throughout my body, turns out it was not only endo but I ended up having lyme disease which many of female sufferers with lyme have endo, just in case if muscle pain worsens and you feel you end up getting more strange or bizarre symptoms which happened to me as the lack of awareness for both endo and lyme is unbelievable, I hope it is just a passing symptom that you get relief from soon I wouldnt wish either of these on anybody x

Minnie153 profile image
Minnie153

Yes! I’ve had it for years and years and sometimes used to get up with my legs feeling like I’d ran a marathon! It was often lower back but then affected hips, knees, lower legs and ankles which was definitely hormone related. GP referred me to rheumatologist years ago who told me it was soft tissue rheumatism - when I brought this up with gynaecologist a couple of years ago he told me it was fibromyalgia - I always believed they told you you had fibromyalgia when they couldn’t find any other diagnosis🤦🏼‍♀️ I’m still baffled by this as it only ever happens in my lower body and it definitely hormone related. I’ve since had a hysterectomy and oophorectomy and the HRT can induce this pain which is awful when I’m trying to manage the symptoms of menopause - night sweats, insomnia, still joints, brain fog, tearfulness, mood swings, vaginal dryness, I could go on…😏 so I’m my case I think it’s an inflammatory response but not sure what the answer is except more pain killers😔

me94 profile image
me94

Thank you all. Yes feels like I've ran a marathon as they get so achy especially in the evenings but this symtom is new to me as didn't suffer from aching legs before but now it's frequent. Haven't been diagnosed with endo but awaiting a lap to see. Maybe the aching legs is endo related? as I don't have any other joint pain

Dogmad6 profile image
Dogmad6

I think leg pain and mobility issues are quite common with endometriosis. I've had the leg pain many years, started with my periods starting and now use a mobility scooter. It's always been worsened in a cyclical way too.

I don't have arthritis or anything of that nature. xx

USgalwthendo profile image
USgalwthendo

My legs hurt during my cycle. Every time. Mostly my thigh area. Only thing I’ve found helpful so far is tens unit and ibuprofen. Walking doesn’t help.

I get sharp pains mainly in my left leg, they constantly feel heavy. I have lots of built up water retention in them. I’m on a waiting list of a diagnostic laparoscopy it’s currently a minimum of 6 months. Most of my pain is in my left side, I have a constant dull ache in my left side of my pelvis. When it’s time of the month the pain is quite unbearable.

Hopefully you get answers soon x

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