New comer please help? : Hello all. I’m... - Endometriosis UK

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New comer please help?

Hayley2512 profile image
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Hello all. I’m hoping someone is out there who could help me. I’m new to this site and I’m glad I found you all.

I’ve always suffered with nasty periods but I just went along with it.

Back in 2013 I was diagnosed with B cell lymphoma had treatment and everything was fine BUT my period were awful but I put it down to chemo and messing my body up.

After 7 months of hell I finally had an appointment with the consultant, never had a scan etc told me I needed the nova sure treatment (lining of my womb mesh)… it was ok BUT after 6 month it started all over again….. yet another visit to the DR…… when I finally had my appointment he advised I needed a hysterectomy ( I was over the moon with as had enough of my period)

At this point I had no scans of what was going on.

Due to Covid I had another consultant preform my operation and was hold I have endometriosis very bad it had pulled my womb right down into my pelvis!!! She left my cervix as couldn’t remove it, cut me internally (which another hospital appointment I’m awaiting for!)

Any after 2 years over the last 3 weeks I’ve been having like period pains again (but put it down to starting back at the gym) but this morning I’ve got bad back ache and cramps really bad…… plus my bowels have slightly changed.

I’m asking has anyone had it return after total removal?

I’ve been reading you can get it back on your bowel ? Has anyone experienced this???

Sorry for the long message. X

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Hayley2512
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SasF profile image
SasF

Hi Hayley2512, welcome to the forum. I'm so sorry to read your story. I haven't had a hysterectomy and so I'm afraid I can't help there, but I can certainly empathize with the bowel issues, back pain and cramps... just awful to experience, and with everything you have been through already. I wish you all the best, and I hope you find some relief and support in the forum.

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