Ovary and organ attachment !

[Skyboots]

Hi anyone else have the problem with organs being attached to each other? Had 3 surgeries over years to help but now my ovary is enlarged and attached to my bowel waiting on surgery to have ovary removed and possibly part of bowel pain is pretty much constant and only relief Is when I my period feels like it’s about to tear 😣

[G3miniStar]

Yes unfortunately I think it's fairly common. I've been told my bowel is stuck to my uterus and ovaries are also stuck and the pain is where they're all moving as they should and can't because they're stuck so they're pulling on the endo and adhesions. Absolutely sucks and I'm sorry you're going through it! x

[Skyboots in reply to G3miniStar]

Thanks for reply it’s really getting me down as the pain seems to be constant I have had endometriosis since I was 15 this is by far the most debilitating and having the most affect on my day to day life not sure if it’s because of my age or what but yes it sucks I can’t sleep can’t lie on my side when I sit it hurts if I eat to much it hurts it just constant 😞 how are you are they doing anything about it soon ?

[G3miniStar in reply to Skyboots]

Are you under an endo specialist still? That sounds horrible and I really hope you're getting support with this. Are you due another lap soon?

I bit the bullet and paid to go privately with mine, it's not cheap by any means but I couldn't wait another two years on the NHS for it x

[Skyboots]

Yes I’m under a consultant that I know well he has operated on me once but I not sure if he’s as good as my previous surgeons they were fantastic, and am due to have an opp within the next three months however haven’t had date yet! have my pre opp tomorrow but I feel like I have no idea what they are going to do as it’s been over a year since he saw me last and things have just got worse my bowels are all over the place doctors been brilliant with pain management and making sure they’ve investigated everything, I have symptoms of IBS even though I don’t have it and have pain across kidneys which could be scar tissue from my opp 15 years ago but they doubt it it’s probably Endo again, have been offered gabapentin to help with the chronic pain but I am very reluctant it’s bad enough that take codeine and morphine which then cause even more problems 😣😞

[mrsk8cook]

Im sorry to hear this. I had multiple surgeries last year, multiple treatments including zoladex, oopherectomy, hysterectomy, bowel resection and so on... only to be diagnosed with ongoing endometriosis post menopause. This means that endometriosis implants in places, produces estrogen which causes more lesions. I hate to be the one... there is no cure for endometriosis... it is a lifelong and debilitating condition. My only suggestion is pain management techniques, meditation, medication, very carefully watch what you eat, for triggers xxx

[BeckyKbo]

Yes I had three surgeries in 2020. First was to remove a tube, then I had a pelvic infection where they found my bowel attached to my right ovary and tube, along with my appendix. Massive adhesions throughout. Then I went back and they found three cavities beyond my womb filled with built up blood. All started after having a uterine ablation. Roll on to October 21 and I ended up having a full hysterectomy due to severe pain. My remaining ovary was embedded in my pelvic wall, my bowl was attached again and also attached to my cervix. I’m 41. It has helped but do still have some pain. Good luck.

[Skyboots in reply to BeckyKbo]

We talked about hysterectomy but said he would just take ovary for now but he also said that if things are bad when he goes in then he may have to, I am completely clueless to exactly what they will be doing as they aren’t sure how much damage is done so I am preparing for the worst and anything else will be a bonus x

[Lily1986]

I’ve had a few surgeries too, I had to have left ovary and both tubes removed in last excision. They were talking about removing part of bowel but didn’t.In a way I’m annoyed about this because less than a year later my remaining ovary and womb and reattached to the affected part of bowel. Now they can only do one more surgery - total hysterectomy and colostomy bag.

I’m in constant pain too, it’s exhausting and horrible so I know how you feel.

Feel very let down by medical professionals in my past as well for fobbing me off and continuing to do so even after a diagnosis of stage 4.

Best wishes to you xxx

[Skyboots in reply to Lily1986]

I feel like this will be the out come I have already had surgery on my bowel and kidneys and back passage as they were all attached once ! 2 years ago had emergency surgery for what the thought was appendix but when they got in was my ovary and they left it there as it was general surgery and gynae doctor wasn’t concerned have had priostap in between and had the mini pill where my hair started to fall out and now I’m am just in limbo waiting it’s so depressing have been in bed for 2 days with pain and now I just pray that they will be thorough with this next surgery i know my ovary is coming out don’t know if they are cutting me open or doing by lap as it’s enlarged and they said they would see on the day 😞 I know my body and I know my bowel is bad I just hope that they don’t damage it to much and listen to me sometimes I feel like they just don’t listen

[Ronsk]

Hi,

Yeah I have the same issue, everything just sticks together like glue. I went for an ultrasound scan 2 years ago (internal scan) .After it the sonographer told me that it was a difficult scan as everything inside your pelvis should move around freely for them to see. Apparently mine is solid, concpletely stuck together and no movement ,which is scary. I've had several laps over the years and they are reluctant to operate again for some reason..they told me it would involve a very large team and the way things are just now with the nhs ,I think staffing is a major problem. The only op I will be getting soon is removal of a fallopian tube, here's hoping they can find it though..

😏

[Skyboots in reply to Ronsk]

When I had a scan it took him 15 mins to find my ovary as it was so far behind my bowel and don’t know how he missed it was so big 😣

[Ronsk in reply to Skyboots]

I remember once i had a scan and it found I had a cyst on my ovary measuring just under 5cm .yet when they operated to remove it it was 7cm . Not sure if the scan was accurate or the cyst had grown..

[Skyboots]

Thankyou all for your responses I fell more positive about what may be will let you know how my pre opp goes today x

[mrsk8cook in reply to Skyboots]

Good luck darling. Make sure you remain in bed for the entirety of your recovery so you don't giggle things around in there, avoid any more adhesions if at all possible. Eat small meals... poo small soft poos. Watch lots of Netflix. Allow others to do everything for you. Xxx

[E-ZEE]

Haaa,same here I had excession back in 2019, they removed few part of my bowel .Hope you are under treatment of qualified trained endo surgeon who experienced in excession surgeries.

[Ronsk in reply to E-ZEE]

How has your bowels been since? Have you had any further issues? Did you need a colostomy bag for a bit until the bowel healed?

[Skyboots in reply to Ronsk]

Had no trouble for around 10 years and the surgeon was very experienced so no bag luckily but it has come back with vengeance having so many problems at the moment ovary is stuck to bowel causing so much pain one minute I’m constipated the next horrific diarrhoea had all the test for IBS but all fine have pain when passing stools and pain constantly in kidneys have a feeling this time I won’t be so lucky to get off without a bag but hopeful it will be short term x

[E-ZEE in reply to Ronsk]

No I did not need colostomy bag. Well some minnor issues are here like long term constipation or diheare, bloating, the worst thing is if I need to go to toilet I can't hold even few mints ..