Inactive Endometriosis???

[iLoveMyTortoise]

I had a diagnostic laparoscopy 2 weeks ago today. The consultant (who is not an endo specialist) referred to what she saw during surgery as inactive endometriosis because it was all scar tissue on the peritoneum. She was pretty dismissive.

This made me feel like my symptoms are going to be dismissed again in future.

Surely my pelvic walls being covered in scar tissue from endometriosis on both sides means I have endometriosis and it currently causes me problems, rather than it’s all healed now and gone away, therefore I should go away too?

If you have technical input here, it would be much appreciated. This consultant has been a cow from the get go.

Thank you x

[EndoSuckss]

Hi! I don't know much about inactive endo - I'm really sorry you feel like you've been dismissed by your consultant.

I've taken the following screenshot from a pdf at google.com/url?sa=t&source=...

I don't know if it helps at all ❤️

Snippet from doc

[iLoveMyTortoise in reply to EndoSuckss]

Thanks for that. I’ve emailed myself the link for future use if need be.

My consultant is an oncology specialist. I had extremely high oestrogen levels and an MRI showed nodules across the peritoneum. I was rushed for the laparoscopy as it looked pretty cancery. Now she knows it’s not cancer she’s discharged me back to my GP with no follow up.

I have been officially diagnosed with endometriosis. I’m just scared that after what she was saying about there “only being scar tissue and no active endo” she will say something in her letter to my GP that will end in me not getting treatment for it. X

[GrittyReads in reply to iLoveMyTortoise]

Scar tissue is not necessarily 'inactive' in that it can be binding tissues together that should not be attached - thus causing pain when there are movements in adjacent tissues (eg: bowel, bladder stomach wall) or just when you are moving around. If this was supposed to be an exploratory/ diagnostic lap, then it has diagnosed ... and it has proved that you have had - and may still have - endo!! Just because she didn't see active areas of endo doesn't mean there are not any. It takes learned, dedicated and experienced 'Endo specialists' to find - in all the very difficult, delicate and 'hard to access' parts of the abdominal cavity - and then identify, all the different types of Endo tissue. Whatever the surgeon said, this lap has shown you do have/have had Endo, and you deserve to be referred to a senior 'Endo specialist'.

[iLoveMyTortoise in reply to GrittyReads]

Thanks very much for your reply. It’s very useful. I’ll save it to use when I next speak to my GP.

It’s all such a mine field. I may speed things up and go private again X