Zoladex side effect

[Sarahslj]

Hi everyone, I hope you are all well. I've been on zoladex for the last 12 months for pmdd, has anybody found their mental health has been affected by taking this? I have been tried on 5 different mental health medications but they all seem to have a bad reaction with me... I'm kinda desperate to find the cause and can only link it to the zoladex injections

[G3miniStar]

My husband begged me to stop my Zoladex because of how it was affecting me. I was angry, teary, foggy headed. Any messing with hormones can do it though so depends if you're on anything else besides.

[Sarahslj in reply to G3miniStar]

Thank you for your reply, I was on an antidepressant for anxiety for 18 years but the zoladex seems to reacted it and with every medication I've been tried on since. It's just a shame it's taken me 12 months to realise what the cause is.

[Ronsk]

Hi,I was on zoladex many years ago for about 8 months I started becoming very anxious and paranoid. It started affecting my work and life in general and I started having panic attacks. I also noticed it caused me to have blurred vision. I stopped taking it and there was a massive improvement.

[Sarahslj in reply to Ronsk]

Thank you for your reply, I have a gyne appointment in a few weeks and will definitely be stopping the injection

[Violet89]

Hi Sarah, Sorry to hear you are having such a rotten time with the zoladex. I was on it for 6 months after my bowel surgery to remove endo and I begged the doctor to not have the last one but she said I had to as it was on my post op notes. I can't imagine how you're feeling. But I know I definitely felt, alone, down, anxious, foggy headed, tired but without being able to sleep at night, bloated, grumpy, angry, fed up, hot flushes. It was horrible. Could they put you on a contraceptive pill instead? Something that's not so heavy in hormones? I'm really sorry you're having to go through this. It is miserable. x

[Sarahslj in reply to Violet89]

Thank you for replying, unfortunately the contraceptive agitates my anxiety. My gp is in agreement and has agreed to stop my zoladex injections. I'm really lucky my gp is very sympathetic x

[FairyM]

Hi I'm so glad I've seen this post as I've just had my 2nd Prostap injection & my mood has nose dived, some days I just really struggle to function & am teary/anxious/angry. I'm going to see how I feel when I have the next one but not sure how I will manage 6 months on it. Sorry you're struggling, it's so awful isn't it!

[Sarahslj in reply to FairyM]

So sorry you're struggling too! It's really not nice. I can let you know how I get on with stopping the injection, which my gp has agreed to x

[FairyM in reply to Sarahslj]

Hope you get on ok x

[Sarahslj in reply to FairyM]

Well it hasn't gone well at all, I couldn't cope and am back on the injection but off all other meds. I feel I'm in a living nightmare

[Dee_EndoUK Moderator Endometriosis UK in reply to Sarahslj]

Hi Sarahslj

I'm sorry to hear about how you've been suffering with your medications - it sounds like you've had a really difficult time. It's great to see that so many of our members have reached out to you with their own experiences to offer help and support.

If you need someone to talk to, we do have a network of support services that are available to anybody suffering from endometriosis. Our free helpline (0808 808 2227) is run by volunteers who all have personal experience of the condition. The times it is open can be found here: endometriosis-uk.org/helpline.

You may also find our face-to-face support groups useful as a place to discuss endometriosis with other sufferers. Please visit endometriosis-uk.org/find-a... to see if there's one in your local area.

Take care x

[Sarahslj in reply to Dee_EndoUK]

Thank you, I'm not a suffer of endometriosis I suffer with pmdd but thank you so much for your reply and suggestions x

[Dee_EndoUK Moderator Endometriosis UK in reply to Sarahslj]

Hi Sarahslj

I just found a link on our website about pmdd. I've posted it below in case you've not seen it before. It also contains details of a specific pmdd support group.

endometriosis-uk.org/blog/w...

[Sarahslj in reply to Dee_EndoUK]

Thank you do much xx