Ruptured Endometrioma

[Sham_R]

Hi Ladies,

On Wednesday my endometrioma ruptured, it was a pain that I have never felt in my life. Called 999 and they didn’t think it was an emergency and asked to call 111, who then asked to call 999 again. This started at 8am and by the time I got to hospital it was 3pm. They did and emergency CT scan and confirmed it was a ruptured and I was infected, but still took them 24th scan to do emergency surgery and clean out. After the surgery At 4 am I was told any further delay would have been life threatening, and the other 2 cyst were still intact and cannot be operated as my pelvic was swollen and that my endometriosis was spread to my intestines.

But at 11am the surgeon who did the surgery said I have sever endometriosis but the other 2 cyst have disappeared and the I do not need any further surgery. The thing is they did not do a scan or anything before confirming that. I am very confused and feel like I am getting fined again. Did anyone have a similar situation and if yes then how did you come around it.

Please help me. Thanks in advance.

[Moonglo]

Hallo. I’m so sorry to hear this happened to you.

I had the same experience up to a point - my endometrioma burst one week before my scheduled laparoscopy. I think I know the exact pain you describe as it was so painful I actually fainted and my husband had to call an ambulance. I was lucky because they found elevated levels of (something- it was all a blur) at the triage and agreed to admit me, and I had an emergency lap.

The thing is, I happened to go to the same hospital where my gynae team were. They weren’t BSGE specialists, but they did have some knowledge of endo and had my medical history and active case notes.

In your case, I imagine you had a team that had to deal with your emergency, but perhaps didn’t have the relevant experience in endometriosis. I suggest you find a BSGE centre near to you, and then get an urgent appointment with your GP so they can refer you. Arm yourself with information from the BSGE centre (and the way they do referrals), and the Endo UK website which describes the treatment pathways.

[Sham_R in reply to Moonglo]

Sorry what is BSGE? I have always been coming to this hospital for emergency but the specialist doctor is in another hospital nearby and the gyne who did the surgery was in touch with him. I will definitely talk to my GP. Thank you so much.

[Moonglo in reply to Sham_R]

BSGE = British Society for Gynaecological Endoscopy. Here is more information about them, and if you scroll down you can search for an accredited centre: bsge.org.uk

Your specialist might or might not be on that list, you might want to talk to them as well for a referral to a BSGE centre. Having endometriomas are a sign of stage 3 or 4 endo, which should qualify you for a referral. Xx