Southmead Endometriosis experiences

[ailis95]

Does anyone have any experience with Southmead Bristol for their endometriosis treatments?

Many thanks

[claudia_91 Moderator Endometriosis UK]

Hi ailis95

Thanks for your message. We understand how challenging it is to find the appropriate consultant to treat your endometriosis. However, unfortunately we are not allowed to discuss specific surgeons or hospitals on the forum.

We recommend that a good place to start searching is through the BSGE website. Here you can find details of accredited endometriosis centres who have specialist endometriosis consultants that have been peer-reviewed by other medical professionals and are deemed centres of excellence. You can find a centre near you here: bsge.org.uk/centre/

Hope this helps, and that you find the treatment you need.

[ailis95 in reply to claudia_91]

Hi, thanks for your response.Just out of curiosity why can people not share their experiences of hospitals?

Many thanks

[Purple_Badgers in reply to ailis95]

I’m guessing it’s for legal reasons. They need to be careful about maintaining their charity status. Fortunately, there are endometriosis guidance and support groups on Facebook etc, where you can request/relay true endo experiences. Of course, you still need to do the research and your own experience could be completely different from someone else’s. E.g., I had a bad experience with a private consultant, but I have a friend who said he was brilliant with her 🤷‍♀️ xxx

[ailis95 in reply to Purple_Badgers]

Thanks for your response, appreciate it xxx

[Lindle in reply to claudia_91]

I am not sure why endo uk always tell women with endo to start with the BSGE list. I have said so many times that this isn't the case. As endo uk must know the centres are in tertiary care which are for cases defined as 'highly specialised' in the NHS England manual for Prescribed Specialised Services and this only applies to severe endo as defined in the corresponding NHS England treatment specification that relates to the entry in the manual. This is giving incorrect information. As is clearly stated in the manual, non-severe endo (which would include initial diagnosis) is treated by gynaecologists with a 'special interest' in endo and commissioned by CCGs in secondary care and only severe endo is treated in tertiary centres, with certain exceptions, and commissioned by NHS England. While this only applies to England in terms of the manual the same principles apply to the devolved boards as per NICE. To just reproduce this incorrect text in comments is not helping women.