Angry at doctors for mistreatment

[HollieMatthews98]

Hi

I am 23 years old and had my laparoscopy on Tuesday. I was diagnosed with mild superficial endometriosis. However I had 2 previous laparoscopy 2015 & 2016 my Gynaecologist found endometriosis but never informed me face to face she briefly mentioned it on a letter once but never spoke to me about it or offered treatment.

I don’t know about why but I’m struggling to come to terms with that part the most, I feel so angry and upset by it. I really want to sue for it Has anyone else done this??

I would love to learn more about this condition. I have mild superficial endometriosis so I know this isn’t the worse form but it’s still so painful and I get so mad when doctors keeping saying ‘it’s mild superficial endometriosis or it’s very mild’ can anyone explain to me what this means because even though it’s mild it still ducking hurts. Feel like they don’t understand when I say I’m in pain.

Please any advice on how to speak to doctor about condescending me or discriminating me because I’m 23 and young and should just get on with it would be helpful

[YummyBear]

Hi Hollie, try to put the negative energy into something very positive, by searching online, particularly USA sites for blogs re Endometriosis to gain research info. I suffered like you with chronic pain from aged 15 to 25 in the early 1970s. The laparascope was invented at the time, so I had a laparotomy in a London Hospital and it wasnt until the following day after the major operation that I was told they removed my left cycstic ovary and fallopian tube due to Endo. I was devastated when told that I would not have children. At the age of 29, I had my first miracle baby, followed by two more in 6 years. I never gave up believing. Endo continued until early 40s, then disappeared after being a guineapig for trials of Endo drugs. As long as you are monitored annually by your Consultant and you do research, it will help you. All the best.

[YummyBear in reply to YummyBear]

......correction...... laparscope was NOT invented until 1972

[HollieMatthews98 in reply to YummyBear]

Thankyou I definitely plan to research and ask questions to gain more knowledge and hopefully by doing that my feelings towards HCPs will change.

[USgalwthendo]

I spent a lot of time researching endometriosis as I needed to focus on something I had control over. I was unable to get pregnant due to stage 4 endo. I had robotic lap at age 33. I am now 42, but believe I had this illness at least from age 14. In researching this illness I read that one of the odd things about it is that pain is not a reflection of stage. So a woman with stage 3 could be unaware and have little to no pain while someone with minimal endo growths/stage 1 could have life altering crippling disease with horrendous pain. I basically did what YummyBear mentions - lots of educating myself. Unfortunately many medical professionals do not know about endo. Once you have your own set of knowledge you can challenge the professionals opinions and better yet, find a gynecologist who is familiar with the disease so you can get better treatment.

[HollieMatthews98 in reply to USgalwthendo]

Thankyou I do feel I need more information before my follow up on 21st Sep?

[USgalwthendo in reply to HollieMatthews98]

I wish you the best👍

[Marcia71]

Have a search in this group for posts by Lindle as you’ll find lots more useful info and help on getting understand and right treatment.