Opinions ?: Hi , not yet been diagnosed I’m... - Endometriosis UK

Endometriosis UK

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Opinions ?

BI2000 profile image
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Hi , not yet been diagnosed I’m only 20 years old . I’m 98% sure I have something wrong as my period cramps are unbearable have me screaming the house down , being sick , diarrhoea, fainting , sweats . Anyone else have similar symptoms and have been diagnosed?

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BI2000 profile image
BI2000
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ZiggyandBC profile image
ZiggyandBC

Hey, just wanted to say that you shouldn’t be in that much pain and you should absolutely try and find out what’s going on so you can get the pain under control. I’m 22 and my pain started when I was around 19/20 and slowly got worse. I’m having my first laparoscopy on Friday to get rid of endo. When I’m on my period I have horrendous pain and can barely move, it makes me sick, faint and dizzy. I hope you can get some help soon! Xx

dodgeviperdiva profile image
dodgeviperdiva

hi hun hope you are well? I've had problems with my periods since I was 13 and have been wrongfully diagnosed twice, first as IBS then PID I've had so many operations u can play dot to dot on my scars 😂.

In 2005 I was diagnosed with endometriosis, I have been passed from piller to post & had every combination of pain relief you can imagine that I'm running out of options!

I've been suffering now 24yrs it's depressing, my symptoms consist of

*Constant severe/disabling abdominal pain. (worse when ovulating or on)

*Nausea /vomiting. (causing dental issues)

*constipation /diarrhoea *ovarian cysts.

*low immune system. *struggle to concentrate.

*Constantly getting infections. * Body aches.

*Persistent tiredness .* Lack of appetite .

*Insomnia. * Headaches.* Memory loss .

*Mood swings. * Low moods & Depression.

*Anxiety & panic attacks. * Itchy all over .

*Constant thirst /Dry mouth. *low sex drive.

*excessive sweating? (does anyone else have this problem?)

*extreme weight loss! Just to name a few.

I caught sepsis & encephalitis because my immune system is weak, I've gone from a dress size 10/12 to a 4/6 in under 6mths and I weigh 42.5kg! (I've been attempting to gain weight for 3 years now 😂)

I am on pip as I am unable to work, when I'm on I can't leave the house as I bleed through my clothes.

My daily life is being seriously effected, its put strain on my marriage and my Family, I'm 37 have 3 beautiful children and had my tubes tied, I asked for a hysterectomy and was refused? 😂

I understand you when u say the pain is unbearable, I'm currently under the pain clinic who have put me on 30mg/ph butrans patches, 600mg of pregabalin, dyhdrocodine and

anti-sickness tablet's, all have their own set of horrible side effects!

I smoke cannabis for pain as the pain clinic refuse to give me cbd oil on prescription?

It's the best pain relief I've found so far & thier are loads of studies on cannabis for pain relief. I hope you get a diagnosis soon, keep pushing and if you want to chat plz msg me. 😊 wish you well xx

EmpireofStorms profile image
EmpireofStorms in reply to dodgeviperdiva

Hi, I was just reading you post then and I have all those symptoms, I'm only 22 and my whole life has stopped. No one seems to be helping me I keep going to different doctors and they just put my on the pill and give me pain relief but neither are helping. They think I might have endometriosis but won't do a laparoscopy until I've been on the pill 6 months but it's horrible living in so much pain it's already been over a year since it started.

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