Has anyone experienced a return of pelvic... - Endometriosis UK

Endometriosis UK

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Has anyone experienced a return of pelvic pain whilst on Prostap3??

Aussie79 profile image
Aussie79

I had my Prostap3 injection almost 4 weeks ago and had hardly any pelvic pain for the first 2 weeks, so happy days. However, since Sunday I've been getting bad period style cramps that are constant. I've asked to see my consultant but can't get an appointment until next Tuesday.

Has anyone else experienced this?

17 Replies

Hey I was doing really well initially I started Prostap in January, but then with my second injection in April introduced HRT and since have been very up and down with symptoms again x

Aussie79 profile image
Aussie79 in reply to Dartmouth93

Hey, thank you for your reply. I was given very little information when I had the Prostap3 injection. I was worried about things like appendicitis, but my GP said I'd have a temperature if that were the case. X

Due to delayed surgery, I’ve had 8 doses now. Great for the first 2 to 3 months but then my leg pain came back. Bloating completely went and other pains occur only if I’ve been sleeping in a tight foetal position.

Aussie79 profile image
Aussie79 in reply to Florrie2

I've been getting bad leg pain as well, and my periods have stopped. My GP has prescribed strong pain killers to tide me over until I see my consultant.

Florrie2 profile image
Florrie2 in reply to Aussie79

I suppose I’ve put up with it for so long, I’ve just carried on doing so! Good point tho x

Aussie79 profile image
Aussie79 in reply to Florrie2

Same, it's awful isn't it x

Gilena profile image
Gilena in reply to Florrie2

Hello! Are you on HRT or not? I have been on it for 10 months now... xoxo

Florrie2 profile image
Florrie2 in reply to Gilena

Hi. Yes I’m on Tibolone

Aussie79 profile image
Aussie79 in reply to Florrie2

I'm on Tibolone as well.

I did 5 months with HRT and 5 months without. Xoxo

Aussie79 profile image
Aussie79 in reply to Gilena

Did you get any pelvic pain with the HRT xx

Gilena profile image
Gilena in reply to Aussie79

Yes, I had pelvic pain with the HRT and that is why I had to stop the HRT. The first 5 months of injections + HRT, I had cramps, bleeding and spotting but no side effects from the injections. Then the doctor asked me to stop the HRT for injections 6, 7, 8, 9 and 10 to maximise the drying out of the endometriosis lesions and nodules. The cramps, bleeding and spotting stopped when I stopped HRT. I have stage 4 endometriosis with bilateral endometriomas, rectosigmoid nodule, adenomyosis and complete obliteration of pouch of douglas, so probably more sensitive to HRT. Xoxo

Aussie79 profile image
Aussie79 in reply to Gilena

Thank you for sharing this information, but sorry to hear that you're suffering :-( I've also been diagnosed with adenomyosis, which in my case causes severe bloating. Xx

Gilena profile image
Gilena in reply to Aussie79

You are most welcome. I also have severe bloating but the injections helped with that. We have to take it one day at a time. When I think of the past (misdiagnoses, invasive exams etc) or the future (stomas etc.), I get in an unhealthy headspace. So I always remind myself to think of NOW, just this very minute. One day at a time, one step at a time, we will overcome! Stay strong! Endometriosis warriors are the strongest humans on earth! Xoxo

Aussie79 profile image
Aussie79 in reply to Gilena

That's a fantastic coping mechanism for living with these conditions. I've had exactly the same experience with the GP fobbing me off, sending me for unpleasant gastrointestinal tests which found nothing, I was told that I must have IBS, and health anxiety (this was after I got upset with the GP a result of not being listened to!). This forum is fantastic as well. Take care and thanks for your help at this late hour xxxx

Gilena profile image
Gilena in reply to Aussie79

When doctors or people say "your symptoms are psychosomatic", I just stop sharing my health challenges with them. They have no idea what we go through and not sure they would be as strong in our shoes. You are not alone <3

Aussie79 profile image
Aussie79 in reply to Gilena

So true. I had the biggest battle with the female GP - it was a male locum who took me seriously and referred me to gynae xxxx

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