Hopeless

[HelenESR]

Hi everyone,

I'm feeling so alone, scared and confused. I was diagnosed with stage 2 endo December 2019 after a laparoscopy. I also had adenomyosis diagnosed after my internal scan in 2019.

Since then my symptoms have got worse, I am back on the pill as the mirena didn't suit me and I feel I am cursed for the rest of my life.

For 2 weeks of the month my back is in agony, my stomach is so bloated I look 5 months pregnant and my emotions are so low I cry all day. I am missing time off work because of my inability to stand or.go amy length of time without crying.

I am 25 and a teacher and surrounded my children all day and helping look after my friend/families babies after work. I am really struggling to see a light at the end of the tunnel and although I have always stayed positive I feel I am at a loss.

The pressure of when to start trying to have children is so intense and to make matters worse my partner of 7 years may not even want them now...

I'm sorry for so much negatively, I have just received a letter pushing my gynaecologist appointment from next week to September and I could really do with some kind words or advice.

[Bubblepoppy]

Awe you poor thing it really is hard I myself was diagnosed via lap in Dec 2019 and adenomyosis through the internal exam after years of daily pain and had the same as you my symptoms got worse, did you see a specialist endo consultant as when I went back a few months ago they put my straight on prostap and it halved my pain in just a month which was a life saver I'm not too sure whether you can have it when you want children as I was lucky enough to have them earlier, but it's worth asking, I thought there was no light at the end of the tunnel but I can finally see a sort of end to it now, hopefully you do soon, keep your chin up and keep fighting the fight feel free to pm me anytime xx

[TennisAM]

Hey I'm sorry it's been so tough and I know how you feel. You're not alone and expressing yourself isn't showing negativity, it's important to share your feelings.

I'm sorry your gynaecologist appt has been pushed back so far.

Which type of pill are you on? If it's a combined contraceptive you could try the pill back to back so you only have 4 periods a year (this advice from Gynaecology has made things less awful for me)

Have you tried anything natural? Some things do work. Happy to share my research/things that have worked for me if you send me a private message xx

[hannah11]

Hey I'm so sorry to hear you are feeling like this. I also have adeno/endo and I know exactly the feeling you are describing, it makes me so sad to know others are going through it too.

I know it's hard to see the light at the end of the tunnel sometimes and you should def allow yourself time to be sad and grieve for the life you wanted for yourself that has been taken away by this disease.

However, please know there is hope for you. There are always things to try. There are medical treatments and alternative treatments and there is a whole army of other patients behind you here to offer support and advice. We are here for you. You aren't alone in this.

With regards to your appointment, have you asked to be on the cancelations list? Have you considered seeing your consultant privately if you can afford it? Covid times are making it so hard to see doctors but it's always worth reaching out to their secretary and seeing if there is anything that can be done.

Hang in there!! Sending you so much love and support. I hope you start to feel ok again soon.