Endo advice required please? : Hi, I hope... - Endometriosis UK

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Endo advice required please?

RR2020 profile image
3 Replies

Hi,

I hope you are all well.

Quick background story:- I was diagnosed with peritoneal endometriosis and had a laparoscopy with treatment in Nov 2020. My symptoms were constant pelvic pain, nausea and bloating.

However over the last 3 months, my periods have been delayed and I have been having severe lower back and left sided leg and hip pain during ovulation and 1 week before my period.

Is this an indication the endometriosis is back or has spread to another location?

Is it safe to have another laparoscopy even though its only been 6 months?

Any advice would be much appreciated. Thanks in advance.

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RR2020 profile image
RR2020
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TennisAM profile image
TennisAM

Hey, was it a endometriosis specialist that did the op or a gynae with special interest?

I wonder if they've missed some endo and that's why the pain is there.

You can have another lap within 6 months, people do, would you be doing it privately?

Severe back pain is pretty common with endometriosis and some women do get the leg pain you mentioned.

What have you tried to lower your symptoms? xx

RR2020 profile image
RR2020 in reply to TennisAM

Hi,

Thank you so much for replying.

Ahh thats quite interesting, I suppose that could be a possibility. The surgery was done by a gynae.

Yes my first one was done privately. Unfortunately I went back and forth with the nhs for 8 years and was finally diagnosed within 2 weeks after going private.

It’s not a very nice symptom at all as it effects my ability to walk, get up etc. 😭

I was advised by my gynae to take a few supplements (DIM, evening primrose oil, vit d, but b) so only treating herbally atm along with painkillers.

I also don’t have gluten, dairy and sugar.

TennisAM profile image
TennisAM in reply to RR2020

Yes I understand it can be such a struggle to get diagnosed.

If you're interested in more natural things that work I'm happy to share my research with you and what's helped me. Feel free to send me a private message, can't post here as Endo UK don't want links to other websites posted publicly.

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