So I phoned my Consultants Secretary YET AGAIN!

[Heloo85]

Ffs, sick of these Drs, their secretaries... Anyway, just so you’re aware, hounding Drs gets you know where.. They just gaslight you... You’re just anxious.. You’re depressed.

So my first question was ‘when am I being seen next’... The answer was July? Wtf!? Oh yes, and that’s just a ‘follow-up’.. Wtf is wrong with you people! 😡! Anyway so I explained I am now 6st wet through, pain so bad I was hospitalised and had to have an ECG because the pain pushed my heart rate over 140 and kept it there for over 5 hours... I can’t get off the sofa, but even if I manage to make a break on a good day, I soon end up back there! Struggling to eat/sleep! Can no longer be a passenger in a car without it making me want to throw up over people! Like seriously, isn’t it about time someone stepped in to do something instead of just throwing paracetamol or naproxen at me 😡

[635703]

Patient advise and Liaison Service google it in your area. Complain there. They get shit sorted.

[Heloo85 in reply to 635703]

Thank you! Think I will! 7 months I’ve been whacked out for now... Which is all good and well, but do these people not understand that we have to work to keep a roof over our heads and food on the table?Honestly, I wish I had it as easy as these Drs, paid huge amounts of money to do not a lot most of the time!

I’ve been deemed as needing surgery, since March... Yet to here as to when that will actually take place?

[635703 in reply to Heloo85]

I stopped work for my sanity and let someone else deal with the stress of the system for me x

[Heloo85 in reply to 635703]

I don’t think I have any sanity left! I actually only work part time and spent the last 4 years struggling to hold that down, due to chronic pain! I really need to work... I literally would never get off the couch again if I didn’t have work forcing me! I don’t want to quit work, in fact I want to work more... I’ve just started a business, I have my part time run of the mill job and my partner and I are planning on farming, and currently have a small flock of sheep we have inherited!

But I fully understand why you have quit for your own sanity... My health’s been declining for ages! I approached my previous employers time and time again telling them I was really struggling... Did they do anything? No! It got so bad I left, and it was within 2 weeks of leaving that I landed in hospital with sepsis! Definitely played a part no doubt!

I’m 36, I have no children, no ties.. I should be able to have 3 full time jobs, a mortgage/own house, travelling and enjoying life... Yet here I am dying on sofa! This isn’t living, it’s existing! Xx

[635703 in reply to Heloo85]

I am so sad to hear of your struggles but there’s so many positives in all that x

[Tinkerbell29 in reply to 635703]

I agree PALs are amazing!!

I hope you’re ok, I really feel for you!! X

[CryBaby91]

Hugs! I feel you love, I really do. Xxxxxxxxx

[Dogmad6]

You shouldn't have to but if you can afford to, go private and see an actual specialist in endometriosis. You are clearly desperately in need of help. xx

[lucikam]

And yet just clap the NHS heroes.... brainwashed people, yet everybody complaining about these heroes.

[Moon_maiden]

Hi

I was searching for a post to ask how things were going. Haven’t looked at posts this week. Sorry the farce is still ongoing. It’s unbelievable you’re still not being seen, really don’t get it.

Do speak to PALS or complaints at the hospital. Can’t remember if you’ve asked GP to intervene. 🤞 you get something sorted much quicker.

I’d suggest going to A&E, maybe pestering them will get somewhere, we have a shocking system 🤦‍♀️