Pain levels are so high at the moment and it's exhausting. I had a neurology appointment yesterday, turns out I don't have a neurological condition, but the chronic pain from endo, migraine brain and the meds are giving me many symptoms related to MS, yay!
Has anyone ever tried coming off of everything and had success? No pills, no hormones, nothing? I feel like I have tried everything and it can't be doing my body any good. I'm at my wits end and feeling totally defeated. Interested to know of others experience or thoughts.
xx
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TinkerQuinn
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Hi Tinker,I'm at the beginning of my explorations into what may help. So, although I'm on the Mirena & Cerazette to see about reducing the period pain, I'm trying some other things to go for a health boost too.
I think some pain might be helped by anti-inflamatories. So, I'm trying out ginger tablets and turmeric & black pepper capsules.
Digestive system discomfort might be helped too, so I'm trying peppermint capsules & probiotics for that.
To relax a bit, CBD oil seems to help me slightly in a nice way.
So, I don't know how to stop taking all of the prescriptions, but I'm trying to make the situation "less bad" for my body.
I know that supplements are not a cure, but I'd like it if they helped. I think they are helping me a bit because I've reduced my omprazole for acid reflux from 2 to 1 capsule per day.
I too drink ginger tea. I do find the anti inflammatory benefits help a little. I am also a big fan of CBD, it has been one of the more beneficial things I have tried.
I tried a vegi diet, although I didn't see any improvement with that one.
Turmeric tea didn't really help. I have tried a number of natural herbal remedies too, from oils to herbs.
Almost feels like running into a wall and as soon as I get a bit of hope and start to feel a bit better it stops working
😏I hope you find the things you are trying help. It is a long journey.
Hi, when I had stage IV endometriosis before my last op I came off the pill for 6 months and used Tranexamic acid and painkillers when needed. It was a lot better for me, I felt my mental health improved
I've done a lot of research on natural remedies so happy to send it to you if you send me a private message. We aren't allowed to post links to other websites publicly because of Endo UK rules. I read below you've tried some stuff but maybe there's things I've found that you haven't tried before
I'm having physio with the pelvic pain specialists. It helps a little. I can relax my pelvis a bit more, making it easier to pee. But I wouldn't say it has helped with any of the pain. We have had to stop at the moment, because pain levels are too high and I started bleeding again. Any kind of exercise intensifies my current flare.
That's the right thing to do. I remember my first physio telling me that the problem with pelvic people is that we spend so much time in pain, that our muscles get weak, our bodies get twisted, our stature is poor, which also contributes to bladder problems and worse constipation. And just think we are the lucky ones having seen a pelvic pain physio. Most people either don't have access or there is a long waiting list.
It does make me cross that it is not counted as a disability. When you are in alot of pain and unable to eat, dress, clean your house, unable to work or study then surely....
Totally agree. I am under the specialists at John Radcliffe. I was given the choice of either having another surgery or trying the programme there. My last surgery didn't give me comfort for very long, so I thought I would try something that could hopefully give me a more permanent solution. I had counselling and physio as part of the programme.
I was thinking about this at the weekend. I'm stage 4, and taking morphine, as well as a list of other meds. I'm so fed up, that I tried to reduce my morphine intake, and other meds to see what how I would be. I too was told its neurology, but not too sure if I had bells palsy. I had a 3week stay in hospital, with adverse reaction to a drug I was taking for endo. Which left me with weakness to the rightside of body and facial drooping. I'm sick of taking morphine has I get sickness. I cannot have anything hormonal based drugs, frankly don't want it.
I have tried herbal teas, and sort of reduced the intake of some of the foods l eat, like wholemeal bread to light Danish, dairy intake to minimal switching to decaff, but having caffeine drink once or twice.
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