Endo pain? Gastric pain? SIBO?: Hi, Does... - Endometriosis UK

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Endo pain? Gastric pain? SIBO?

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Hi, Does anyone else have digestive pain that accompanies your endometriosis pain?

I'm trying out the Cara Care app (tracks food, medicine, supplements, mood, poops, digestive symptoms, exercise, etc). I'm starting to suspect that a significant proportion of the pain I have is from my digestive system. Before, I could really only say if it was an ache in the abdomen, or a stabbing feeling in the abdomen.

Although this is odd, it gives me a little hope that maybe I can identify what the digestive pains are & try to reduce those. The endo topic itself is waiting for an MRI scan, so not much I can do about that at the moment (besides hormonal treatment).

The first conundrum I have is that I feel better (digestive system less sore) when I eat 1/2 size meals. Of course, the problem with that is being hungry, so not an ideal long-term solution.

I was just wondering if anyone else was exploring this connection? I read that women with endometriosis often have digestive issues, and often Small Intestine Bacterial Overgrowth (SIBO). Has anyone managed to get a test and treatment for SIBO?

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Jgooderh profile image
Jgooderh

Hey! It’s like you’re describing me lol. I was diagnosed with stage iii endo with deep infiltrating endo on my bowels and had a bowel resection done as part of my excision surgery. However, though my surgery fixed literally all of my endo pain, I’m still having GI symptoms and my doctor is trying to figure out what’s causing that. They think that I had GI symptoms from the endo but maybe also another underlying condition that was masked by the bowel endometriosis. I had sharp pain when I passed a bowel movement, bloating, pain in the abdomen, fatigue, and either constipation or diarrhea. The sharp pains have all gone away, but the rest of the GI symptoms are still here.

I also find that I can eat in small portions and that’s the only thing that helps.

By the way, for me, according to all MRI’s, ultrasounds, and CT scans, I didn’t have endo. But when my surgeon opened me up, it was everywhere.

Hi, I’ve had very similar problems and didn’t realise it could be connected. Thanks for bringing this to light!

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