Hey!

[white61]

Hi, I have always had ovarian cysts come and go and it's always caused me severe pain. My last ovarian cyst was 40cm big and I now only have one ovary. I'm super cautious of monitoring my pain as I don't want to be ignored like before and end up losing my only ovary left. I am still in a lot of pain since surgery - which was November 2020 and I still have the same pain like before surgery. I did have another cyst since my last surgery but that one has gone by itself - I have the scan end of feb 2021. They are unsure what could be causing this pain, I was checked for any endo in my surgery but they couldn't see any at the time. Has anyone got symptoms like me but unsure of what it could be? I'm never listened to at the doctors and always just pushed off as oh it's probably period pain deal with it. I've been on medication for years and I'm currently on tramadol quite regularly but they don't want me to manage on that in the long run but they don't want to give me anything stronger either. But I need to do 'pain management' - it's like they don't want me on strong tablets but if that hardly touches it sometimes what else am I meant to do?! Sometimes I'm in agony and simply can't do anything, it's often across all my stomach and down my legs and the tablets often knock me out almost so I don't wake up til mid day the next day and then I feel even more guilty the next day and feel down. Is anyone else experiencing similar problems or does everyone know what they have on here? The nurse did mention that I could have endo and in the op they might not of seen it but I doubt that is the case. Much love and sorry for the rant lol xxx I'm from the UK

[Jasmin24]

Hi white61

I do understand where you are coming from. I ended up in hospital, for adverse reaction to a medication, given to control the bleed, by my consultant.

I have cysts, endo in pelvis, colon, as well as fibroids.

Anyway I always had whatever the GP prescribed, and was trying to manage with the pain. However I ended up in hospital, and very poorly, which caused paralysis. I also started my bleed again. They gave me codine, and alsorts of other drugs, that did not work. I ended up being on morphine in hospital. I had crippling pain, which effected and made my right leg even weaker, has the right side of the body was weaken by the drug that caused the reaction.

I won't bore you any further, i was referred to the pain management team, who I am under at the moment, and currently on slow releasing morphine.

I find doctors only carry out referral if its instructed by the consultant.

Can your consultant not recommend to refer you?

Look at the NICE guidelines, has they cannot be serious to let you suffer like this.

I don't have any faith in my gynae consultant. So i pushed my GP to refer me to am endo specialist.

I hope this helps.

Don't give up.

[white61 in reply to Jasmin24]

Hi, Thank you for your reply and don't worry you don't bore me at all it makes everyone feel better when someone can relate. I hope you feel better soon and can hopefully manage the pain better over time. I know how frustrating it is but your doing amazing. I have asked if the specialist consultant can refer me to the department within the hospital, because if the doctors do it it will take so long and they never listen to me anyway. Some doctors/consultants are amazing but some really don't listen and I've had awful experience with. Thank you for sharing your experience, wish you the best x