Pcos : Im19 I thought i had endo but i had... - Endometriosis UK

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Pcos

Rose2001 profile image
9 Replies

Im19 I thought i had endo but i had a private mri and its come back i have Polycystic ovaries, 2small fibroids in my uterus and retroverted uterus. I just wondered if anyone else has these problems feel quite scared and dont know what to think i only had the results back i havent spoken to anyone. Please if anyone has anything similar

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Rose2001 profile image
Rose2001
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9 Replies

Inositol is supposed to be good for that

Mumsie31 profile image
Mumsie31

Hi Rose2001,I have pcos, I know it can be scary and daunting, but you will get through this. I was told the chances of conceiving naturally were slim, well I now have 2 teenage children, without any intervention, so it can happen. Sending you light and love.

TennisAM profile image
TennisAM

Hi, so sorry, I know its scary but please don't worry. If you don't meditate, please do that daily as stress can make these symptoms worse. Can I please ask why you thought you had endometriosis? What symptoms do you have? Is your consultant an endometriosis specialist xx

Rose2001 profile image
Rose2001

I have no symptoms to pcos but my doctor said pco is different just because polycystic ovaries showed up in my mri dose not mean i have pcos so im having bloods done today to rule pcos out i don’t think she thinks i have pcos it’s all confusing me quite a bit. I have regular periods, very heavy bleeding, pain throughout the month i had 5 days last month where i didnt have some sort of pain shootingpain/dullaching ect also i have back aches and leg ache that keeps me awake at night im with a gynaecologist that specialises in endo he didn’t want to send me for an mri on the nhs because he “didnt want to spend that much money on me” so i decided to go private but even tho no endo has shown i understand it dosnt alway show so im going to push for a laparoscopy as every specialist/doc I’ve spoken to thinks that’s probably the problem as i have every symptom of endo. What do you think? Xx

Lofty1589 profile image
Lofty1589

Hi! I was 19 when I found out I had PCOS. Now if you have symptoms that match up to Endo, it isn’t ruled out! Endo cannot always be seen on scans. You need to push for a laparoscopy x

Rose2001 profile image
Rose2001

Sorry to hear that, Exactly my thoughts what do you think on taking the pill before being diagnosed because I’ve been resistant to take the pill before being diagnosed despite the pain i get

MissPickles profile image
MissPickles

I was diagnosed with PCOS many years ago, via blood tests and scan which showed both ovaries "distinctly polycystic" plus i had really bad adult acne. I managed the symptoms and never had any follow up scans until recently, but an ultrasound before Christmas showed the left ovary now appears normal, and only the right one is polycystic - plus my blood tests are now normal so I am considered PCO not PCOS. So it can change....

The right side is where I get all my pain although the doctor said "PCOS isnt painful" i'm not so sure, especially as I have now found out that the left ovary is normal

Rose2001 profile image
Rose2001

Its terrible such awkward situation i think everything is confusing and some doctors dont take enough time to explain and go through everything or even consider the pain we actually get it. Hopefully the right side goes back to normal and you dont get any pain keep me updated on anything stay safe x

Niki3 profile image
Niki3

Hi Rose, I was diagnosed with PCOS several years ago and since then I have tried pretty much everything under the sun to balance my hormones, manage my pain and to feel 'normal'. I have tried all of the quick fixes including taking inositol (which worked for a while, but then I realised that I didn't want to take it forever). It's a frustrating journey and doctors don't understand what we're going through most of the time.

I have finally found the right balance for me after years of struggling. Here's what has worked for me:

I made the switch to a whole food plant-based diet, and I have reduced my caffeine intake. I also avoid intense exercise as it raises my cortisol levels, and instead opt for slower, weighted exercises and walking 10k steps per day. This has made a huge difference, coming from HIIT classes which always made my symptoms worse. This advice was actually given to me by my hormone coach and it blew my mind that it actually worked!

Most importantly, I have to work on reducing my stress levels daily as I'm a very anxious person. This includes daily meditation practice (I use Headspace) and taking CBD. I also love this product because it also helps reduce pain significantly when I'm on my period as it's a strong blend of CBD and curcumin: truthnaturals.co.uk/collect... It's expensive but it's so worth it for me!

With all of these changes, I have actually seen amazing results in my cycles as well as my blood tests and scans. The main factors are definitely reducing inflammation in your body and reducing stress levels. The best thing you can do is to be kind to your body and support it on its healing journey.

I hope this helps!

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