Nerve issues with Endo

[N_12]

Has anyone had any Nerve issues with Endo? I think I have that’s why I’m asking. Any feedback would be appreciated xx

[Bethleah]

Hi I get random sharp nerve pains like the end of my nerves are being hot wired. I was told by g se it’s because my parasympathetic nervous system (I think) is affected by the Endo.

[N_12 in reply to Bethleah]

Where do you get the pain?x

[Bethleah in reply to N_12]

It’s random so anywhere but usually doesn’t last long. I do tend to get it in sole of left foot and to left of belly button at same time. It’s brief but sharp and can take my breath away.

[N_12 in reply to Bethleah]

Aww I hope u feel better soon xx if I ever get any answers I will let you know x

[Bethleah in reply to N_12]

Thx but as had for years I’m resigned to it x

[TennisAM]

Hey, sadly endo affects the nerves of any organs it's near to. Acupuncture can be very effective treatment and the other option is painkillers like amytryptline. Endo also affects the autonomic nervous system which will affect the nerves too. Hope you find something that helps. xx

[N_12 in reply to TennisAM]

Hey thanks for the feedback x Has this effected you? I have like a shaking feeling but I’m not visibly shaking if that makes sense. Xx

[TennisAM in reply to N_12]

Have you spoken with any doctors about this? Sounds like you need a referral to a neurologist. Have you been keeping a symptoms diary? Worth it, note anything at all that happens as it may be useful. So I have bowel and bladder endo, so get nerve pain from both. I have a tingling feeling sometimes but never a shaking feeling. xx

[N_12 in reply to TennisAM]

Yes I have been finally referred to a neurologist and I have had a head scan and neck scan so waiting for the results to see if there’s any nerve damage due to the car accident but I personally think if there is nerve damage it’s due to my Endo as I have it on my bowel xx

[TennisAM in reply to N_12]

I hope they get to the bottom of it! Did you ask them about the endo?

[N_12 in reply to TennisAM]

No so far it was an appointment over the phone and I mentioned this tingling feeling like I’m shaking but it’s not visable. As I have had 2 car accidents and have had head and neck pain they said they would do a head and neck scan to see if there is any nerve damage. I am awaiting the results and then hopefully I get to speak to the neurologist again and I can tell him about Endo as this maybe Endo related xx