Bladder problems : Hi anyone any problems... - Endometriosis UK

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Bladder problems

_Sunflower profile image
12 Replies

Hi anyone any problems with their bladder and needing to pee often but little and needing to pee urgently and feel so uncomfortable i am exhausted.

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_Sunflower profile image
_Sunflower
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12 Replies
Moon_maiden profile image
Moon_maiden

Hi, had this for last couple of years, did improve last year after working out it was sitting upright that bought it on, avoided that as much as possible. still recovering from hysterectomy and he had to unstick the ureters so assuming that was the cause

_Sunflower profile image
_Sunflower in reply toMoon_maiden

I had endometroisis removed last december but didnt get to see the consultant again due to COVID so havent been able to ask him any questions its just frustrating at times i would sit alot for work

Moon_maiden profile image
Moon_maiden in reply to_Sunflower

You should get a follow up appointment at some point. Mine is telephone in Feb. You could contact the secretary and see if she can get any answers for you.

At work beginning of last year I ended up using one of those relaxer chairs with keyboard on my lap, it was much more comfortable, looked odd, but I didn’t care 😂

_Sunflower profile image
_Sunflower in reply toMoon_maiden

Thank you never though about phoning his secertary as long as it helped thats the main thing and thank you so much for your replies it nice to speak to someone in the same boat as my friend doesnt understand and its hard to talk to her about it all

Moon_maiden profile image
Moon_maiden in reply to_Sunflower

If your friend is likely to look point her to the endo uk site, has the information needed to understand. They also have a telephone helpline if you needed to talk to someone.The forum is excellent for advise and support.

Sometimes it’s hard for others to think about conditions that could easily happen to them. I hope she’s supportive in other ways 🙂

_Sunflower profile image
_Sunflower in reply toMoon_maiden

Great thank you and good luck with your telephone app

Lindle profile image
Lindle

This might be useful:

endometriosis-uk.org/endome...

_Sunflower profile image
_Sunflower in reply toLindle

Thank you i will have a look

Morning,

How long has this been going on for?

I know several ladies who struggle with this.

If it's been getting worse, might be worth getting a urine sample to check for UTI - although that might not be the main culprit for your symptoms, best to check it's not a factor adding to them.

Someone I know suffered from chronic bladder infections/ cystitis & has been on long term antibiotics for the last 10 years.

All the best xx

_Sunflower profile image
_Sunflower in reply toPurpleSynesthesia

Started sunday but had it last year and drs said it was due to endo and no infection but I will look into the others thanks

Mheulgio profile image
Mheulgio

I agree with above-definitely make sure it’s not infected related. Or try treating like cystitis and see if that helps. I was diagnosed with internal cystitis last year and this is often the main symptom. I’m hoping it’s mostly the endo I’m waiting for surgery on but likely I’ll need to see a bladder specialist at the end of all this as well. But I basically am always on the edge of a uti so always feels like one! Hope you get it resolved.

_Sunflower profile image
_Sunflower in reply toMheulgio

Thank u for your reply I will have a look into that had the same thing last yeat and gp said it just a side effect of endo I had alot of UTI and in so much pain and got op in December 2019 which did help but havent got to see consultant again yet I try to be positive buy its hard at times good luck with your op

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