Things need to change!!!: Hello everyone... - Endometriosis UK

Endometriosis UK

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Things need to change!!!

Love_Yellow profile image
9 Replies

Hello everyone.

Hope you have had the best Christmas you could.

I’m due for my second Lap and currently taking Dihydrocodine and Paracetamol, I’m also on Laxatives for the foreseeable. My pain is horrendous.

I’m looking to change my diet and hoping for some advice and recommendations of diets and Books please.

Thank you so much💛

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Love_Yellow profile image
Love_Yellow
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9 Replies
Tinytina15 profile image
Tinytina15

I’m currently looking into changing my diet too, sorry I don’t have much advice, the only things on google I can find are diets with more fibre and low fodmap diet

Sorry to ask but why are you on laxatives long term? Is it due to endometriosis? It’s just I’m suffering recently and I’ve been put on laxatives for the next few weeks but I don’t have endometriosis diagnosed yet , Just wondering if it might be connected?

Take care x

Love_Yellow profile image
Love_Yellow in reply to Tinytina15

No need to apologies, I’m currently looking on the internet and trying to find recipe books. I’ve I find anything I will definitely share.

I’ve always suffered with my bowels, I eat foods with fibre but they don’t help. I had a blockage in my bowel two weeks ago. This could be connected as constipation and bowel issues are a symptom of endometriosis.

I hope your getting the help and investigation you need.

Thank you

Tinytina15 profile image
Tinytina15 in reply to Love_Yellow

Aw thank you and I am getting help and I’m not at the same time .. I’m on laxatives as I also have a bowel blockage, I’m still on a waiting list for a gynaecologist so I’m not really getting any other help, they keep telling me all the pain is down to constipation.

which I really don’t believe it is as I’ve suffered with constipation for years, but they’re making me doubt myself constantly, I keep thinking maybe it’s not endometriosis but every symptom just seems to fit 😞 xx

Love_Yellow profile image
Love_Yellow in reply to Tinytina15

Please don’t ever doubt yourself, this is what happened to me for years I was getting told it’s this it’s that. Having ultra sound scans coming back normal and X-rays coming back it’s my bowel blocked.

I started to think is it all in my head. NO we know our bodies and we are the ones that live with this every single day.

Keep fighting and push on, request a Lap for a endometriosis diagnosis. Xx

Tinytina15 profile image
Tinytina15 in reply to Love_Yellow

Thank you honestly you’ve gave me that little bit of hope back! Im definitely going to push! I hope your second lap goes well xx

thara9643 profile image
thara9643 in reply to Love_Yellow

use amazon

Moon_maiden profile image
Moon_maiden

Hi have you searched the forum, there’s been lots of posts in the past. I’ve tried cutting out dairy, gluten, didn’t work for me, but others have had success. For pain I’m on Amitriptyline, Oramorph occasionally and paracetamol when needed, plus laxatives.

Hope you find something that works 🙂

🤞 you get lap sooner rather than later

Maya23 profile image
Maya23

Sorry I don’t have diet advice for endo but I also have fibromyalgia, lupus, chronic migraine and IBS symptoms and I have tried cutting out gluten, dairy, refined sugar and eating more fruit and veg. It has helped my other symptoms.

Sorry you are in so much pain - is it continuous? I’ve been having a lot of pain in the last 3 months which might be to do with the adhesions spotted in my last lap (but not treated) and I am still waiting for a referral back to gynaecologist. I use mefalamic acid and cocodamol but I have to take a laxative with the cocodamol.

I hope you get the treatment you need soon xx

Mdunc profile image
Mdunc

I have 'the endometriosis health and diet program' book which has different recipes and tips to help with endometriosis.I have just got the book so can't say too much about how good it is but it seems good so far!

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