Biopsy results have me baffled

[KimPV]

Got my biopsy results and he said it’s endo , which makes no sense as they have always been adamant I don’t have any. So I’ve had a hyesterctomy nearly two years ago for ovarian cysts and pain for years, and have been ok for a year and a half then agony and severe diaorhea. They thought I had kidney infection but it was a big cyst they thought was ovarian remnant syndrome. My point is where has the endo come from if I haven’t had it before and have no ovaries anyway... so disheartened I’ve emailed my consultant for more information... I want a follow up to tell me exactly what was found and why.

Feels like endometriosis is just shoved aside and ignored as we all sit here in agony

Stay safe stay well

[PL0NKER]

Endometriosis grows on its own and doesn't need the uterus or ovaries to function and grow it's a full-body disease and not just specifically gynecological - that's why a lot of people are ignored and shut down as soon as their symptoms are outside of the pelvic region because of the outdated education. Hysterectomies don't cure or stop endo from growing (they're good for curing adenomyosis, endo's sister).

It's extremely possible the growth was elsewhere in your body already prior to your hysterectomy and so has had time to continue growing in awkward places ☺