Hello all! I am new here, just joined today. I have been having symptoms for approximately 5 years now. I've seen many doctors over the years with complaints of pain. I have seen two specialists. The first specialist told me that he 'thinks' I have endo behind my cervix but would need to do a laparoscopy to be sure. He changed his mind during the time it took for me to get changed after my examination to pushing me into getting the Mirena coil. I do not want this, I have done my research on this and it doesn't seem like a good option for me. He also prescribed me with tranexamic acid, which I have explained that both my Mum and her Mum had thrombosis. (It is also how my Mum lost her sight).
The symptoms have gradually gotten worse, and I didn't agree with the first specialist, so pushed to see another. This time (I went three weeks ago) I listed my symptoms, which are as follows:-
Discomfort in certain positions, pressure sensation and pushing on the bowel.
Usually a couple of days after intercourse I get aches and pains in cervix and bladder area that lasts for a few days.
Extremely painful and heavy periods.
Irregular periods which used to be very regular.
Sometimes during my period, I can go between getting old blood, heavy normal blood colour, and a lot of clotting.
My cramp lasts the entire duration of my period.
Every other month I get cystitis/UTI symptoms, the month after that is where I get the really painful periods.
Severe headaches/migraines that last for days just before I am due on.
I get bad bloating almost every day.
Stomach pains, aches and pains in womb and cervix area, sometimes I get shooting pains, others the pain is a dull ache and travels around these regions.
My orgasms are quite painful these days!
I get chest pains and digestive issues
Fatigue and exhaustion feeling (I also have fibromyalgia)
It took me crying at this specialist for her to 'examine' me, which wasn't much; I'm not sure what you would have been able to see in my cervix with just a speculum!
She told me that I 'just have heavy periods', and that I need the pill (she pushed the Mirena coil on me again) she also prescribed again tranexamic acid. I apparently have to try hormonal intervention for 3 months before she will do anything else.
I am seriously at the end of my tether here, I am struggling to function. The pill is making me miserable and it hasn't reduced my symptoms at all. (I also told her I was taking the pill and it didn't do anything for my periods) I just feel like no one is listening to me. I am trying to see if maybe I need to find an endo specialist, as I do not feel like anyone is listening to me. It is really getting to me now. I have been on some support groups on facebook for a number of years now, but because my post is long no one wants to read it and comment. I am keeping fingers crossed I get a reply this way.
I'm sorry it's long and waffley but this is where I am at right now.