May I removed 2 ovarian?: Hi I'm 26 years... - Endometriosis UK

Endometriosis UK

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May I removed 2 ovarian?

Nikilll profile image
9 Replies

Hi

I'm 26 years old girl. I have endometriosis 3rd stage( retrograde mensuration) and I had surgery for ovarian cyst 10cm in 2018. then I'm taking mini pill, but not suitable for me. Period came for daily so I stopped. Next I'm using combination pill for 18 months and still I'm using. I have a question for myself . How long it will be take this tablet. Already I had take this tab in teenage and now also.if I stopped this tablet my period is heavy so again I started this tablet. Some time spotting regularly with white discharge or blood or brown discharge during combination pill. I'm suffering abdominal pain daily. Rarely some days I have no pain. I'm feeling soo much tired and stressed.my weight gradually decrease. Now my weight is 39kg. Am attended age on my 11. This problem started at that time. now am planning to do go to search my first job. If i remove my both ovaries. What happened to me?

Thanks to

Endo warriors

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Nikilll profile image
Nikilll
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9 Replies
Lindle profile image
Lindle

The only treatment for stage 3 endo is complete excision of the disease itself. Unfortunately removing the ovaries would still leave the lesions in your pelvis. This would also stop oestrogen production that your body needs but would not stop the endo as it can produce its own oestrogen. You need to try and find an endometriosis excision surgeon in India - perhaps if you google you might find one.

Buster69 profile image
Buster69 in reply to Lindle

Lindle, we had excision by one of the top surgeons in country supposedly, promised the world free of pain....and after spending £13k for surgery, there was no change in pain or symptoms....then he said well it could be ademyosis...and advised surgery to remove the uterus.....

Lindle profile image
Lindle in reply to Buster69

Yes it can be a long journey but I would be wary of any surgeon promising freedom from pain as there can be many pain generators besides endo itself. It can be difficult to know what a 'top' surgeon means.

Buster69 profile image
Buster69 in reply to Lindle

He clearly meant endo pain, as he specialised in that as an expert. We were very clear on the specifics and outcome after excision surgery.

Lindle profile image
Lindle in reply to Buster69

I personally don't think any surgeon should promise or guarantee to remove every scrap of endo and that there will be no more pain from endo pain especially in such a complex case. It can sometimes lead to unrealistic expectations.

Nikilll profile image
Nikilll in reply to Lindle

I'm already do surgery for endometriosis. I have no father to take care of me. I searched around my city no endometriosis doctor here. I didn't have source to go out of my city. source means all money and etc. My wish is now I go to work but this problem make me spotting with abdominal pain like period abdominal pain. so I decided to remove ovaries. If I remove ovaries means after anesthesia when I wake up pain is unbearable?.or remove one ovary means butter idea?

Thank you to lindle

Buster69 profile image
Buster69

Nikill, removing ovaries is no guarantee pain will go away. My advice is read up on Wendy Laidlaw's book on how to deal with endo first and see how you progress.

Bubble_by profile image
Bubble_by

I agree with some other comments on here. Removing your ovaries will not guarantee no more endo. There are people who have had complete removal of their wombs and sadly still suffer with endo.

It can be a bit of trial and error with contraception and you may have to try a few different ones before you find the right one for you.

Have you had your weight loss investigated? I know it's horrible when you're stressed and probably don't feel like eating much but sometimes diet can actually make your symptoms worse.

I think it's definitely a good idea to look for another doctor to help you. I know it can be disheartening when you don't get the results you wanted, but it will definitely help you in the long run.

Hope you feel better soon 💕

Nikilll profile image
Nikilll

Hello bubble

I'm booked online consultation 500 india rupees. She (doctor)didn't give any solution to me and she tried to disconnect my call. She answered me you are tried all treatment. So no treatment available in endometriosis. My wish is also I will find good gynecologist.

Thanks bubble

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