Episode

[H2847]

Hi everyone. I had a diagnostic lap in january and no endo was found...i was told there would be a follow up appt but since covid etc i've not heard anything. Anyway my symptoms seem to have gotten better, ive been off the pill for about 3 months now periods are heavy still but no 'funny turns' until this month....

It happens when i am about to start my period, i can feel the pelvic pain starting and my whole body is just bent over in pain. I cannot walk as my vision goes blurry like i am just about to faint. I spend the next 40 mins tossing and turning, on the toilet trying to 'push.' I dont have any children but i am told the pain sounds like im having contractions. I am sweating, grey whilst also shivering. After neatly an hour a hot water bottle and 4 painkillers seem to settle it and i spend the rest of the day just wiped out in bed.

I thought these episodes had stopped but this was the worst one. Im now 29 and had this since i started my periods at 17. The pill does help but i just never want to go through this again. Also making me doubt having children purposely putting myself through this pain. Also in fear of passing this issue onto a child, i wouldn't wish this on anyone.

Does anyone else go through this? Just don't feel like its normal, this is not just bad period pain. I thought endo would be the answer but im back to square 1 again, something i just have to live with?

[123haha]

Hello! I had the same exact pain when I was a teenager and got my period. I was finally diagnosed for endometriosis 20 years later. I don't know how I can be of help, but did a specialist performed the laparoscopy? I would highly suggest getting the surgery with an endometriosis specialist. In my experience this sounds like endo to me, but everyone is different, and I am not a doctor.

Tips that can help in any case:

1. Start getting your medicine a couple days before your period, it may help. Iburpofen is working better for me.

2. Change your diet to a plant based diet, look for endo diet, healendo has a lot of information.

3. Acupuncture may be helpful.

4. Arvigo massage helps me a lot.

I am wishing you'll find the answers that you want. Don't lose hope. Wishing you all the best.

[H2847 in reply to 123haha]

The lap was done by a general guyne ive tried for years to see a specialist and just get nowhere...the results said i had scarring somewhere but i was still half asleep and never recieved a follow up appointment. I will try ur recommendations though willing to try anything now....thanks alot x

[123haha in reply to H2847]

Hello again,

I would highly recommend seeing an endometriosis specialist who performs an excision surgery. I don't live in UK and I am not familiar with the healthcare system there (US based), but I cannot stress how important this is. Don't rush, take your time and evaluate carefully all of your options, but I feel that this is a very important step towards your recovery. If I can help let me know. I am sure that you can find recommendations for specialists in your area from people here.

I know how hard it can be, it took me 20 years to get a diagnosis, and I wish someone would have told me earlier to seek the help of a specialist. You need to advocate for yourself and it's not easy, but you are not alone. We are all in this together. If you need guidance on how to navigate your health care system and that stresses you out, don't hesitate to contact people. It can be hard and frustrating. There are always other endo girls who would love to support you, and would share information with you. Even if endo is not your answer, the specialist will be able to guide you. When you have your answers you can educate yourself more and make more thoughtful decissions on ways to manage your symptoms.

I am wishing you all the best, don't lose hope, things will get better. You are not alone.