Has anyone had any news on their postponed procedure? I'm awaiting a laparoscopy. Had an MRi pelvic scan with contrast dye prior to lockdown and the results indicated no convincing evidence of rectovaginal endo, it mentioned a nabothian cyst but I suspect this is quite common. Despite this, I'm in so much pain, I'm day 3 of my period, and just intense pain in lower right side pelvis and back which refers up my back. walking is difficult. i'm only on mefanemic acid, touches the pain very briefly, but heat and limited movement helps.
The not knowing is just creating more anxiety.
I'm sure others are in the same boat.
Written by
priyainindore
To view profiles and participate in discussions please or .
Hi, not a thing about surgery starting again. I was due to have surgery this year but been told it looks like 2021 now which doesn’t help when you are in pain.
Can you call your GP for some strong pain medication like codeine?
Definitely speak to GP about your pain. When everything starts, always check for cancellations as well. As far as I’m aware MRI doesn’t show superficial endo, the lap should though. It’s promising nothing showed.
Hope you can get pain sorted. Wheat bags help sometimes
Thank you! Yes I'm close to the top of the list as the lap was due on the 30 march. Was so close. On the wheat bags and have a small electric heat pillow too.
Mine was scheduled in Feb -and on the day as I was being prepped it was cancelled. Then I was re-scheduled for March 25th - It got cancelled the day before.
I was told most likely June/ July dependant on this pandemic. I'm not holding my breath.
I was so gutted especially the second time. It's for laparoscopy to find and abate endo. Also hysteria copy to get rid of fibroids. He also said he would put dye through my ovaries to see for any obstruction.
I'm the same got diagnosed with endo via MRI scan so I'm assuming it's bad to be picked up and have a letter sent through to me confirm it but was put on on injection was meant to be for 4 to 6 months but ended up being giving the wrong instructions by a registrar when the 6 months was up resulting with me being on the injection for 16 months. I was a mess to be quiet honest. I needed to wait for my endo to become active after the treatment so was meant or be going in early July.even when I saw my surgeon he said from a previous photo took of my insides from when I was sterilised how bad a mess I was in considering I am 35 he said I looked more like a 45 to 50 year old due to the damage. Can't see the op happening now. I'm getting really anxious waiting as my pain is terrible every 8 to 10 days with excessive bleeding and pain to point I can't look after my children. I've been using the cbd muscle and joint gel which numbs my hip and back pain a tiny bit with the pain killers and my hot water bottle and a constant rocking movement I seem to get through the 4 to 5 days of immense pain I get every 8 to 10 days. So I for one can not wait for the ops to start again I'm in desperate need even if it just eases the pain ever so slightly. My next move if I'm bad again this month is hospital for morphine but I'm scared!!! I know there is always somebody out there worse off than myself and my heart goes out to them, just wish something could help all of us endo warriors 💛💛💛💛💛💛💛💛
Not heard when they will be re starting, but I did have a pre op appointment on the phone 2 weeks ago. The nurse was unable to say when, but said they wanted everyone ready for when things are back up running. I was due for a diagnostic lap and cystoscopy in mid April.
I’ve just spent the last two hours having an period ‘episode’ (sweating, being sick, unable to move off the floor from the intense pain, needing the loo but can’t go etc etc..)
so.. I feel like I may call them tomorrow and just see if they can tell me anything helpful.
I’ll post here if they do
Also my doctor prescribed me so stronger cocodamol, which together with a heat pack/bottle seems to help me.. I just didn’t get a chance to take mine tonight, as my pain came on too quick.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
which doesn’t help when you are in pain.
Has anyone had bad side effects on decapeptyl and HRT? 
Anyone had experience of having a mri after a lap surgery and the lap surgery showed endo (no endo was removed) but mri shows no endo
Anyone had a surgeon who operates on a 'Frozen Pelvis' for a second time? 
Has anyone got or heard of endo in diaphragm or on lungs?! 
Has anyone had a lap to separate bowel, uterus and pelvic wall?
