Endometriosis newbie :): Hi new to this... - Endometriosis UK

Endometriosis UK

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Endometriosis newbie :)

Louisespice95 profile image
7 Replies

Hi new to this group I recently got diagnosed with endometriosis also have HPV when I had my smear so alot of news this past two weeks now on hormone tablets for 3 months then go from there did anyone change there diet or do anything to help with the pain I'm a carer so I can't take anything to strong thanks Louise x

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Louisespice95
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Moon_maiden profile image
Moon_maiden

Hi

How are you feeling about it?

Pain relief is trial and error, you need to take it regularly to prevent as much as as relieve.

I have paracetamol, Naproxen and Nefopam, with occasional morphine at night.

Currently looking into FODMAP for diet, haven’t started yet.

Louisespice95 profile image
Louisespice95 in reply to Moon_maiden

Abit stressed tbh it's started in 2013 but noone knew what it was then I had a scan and they could see it I got put on codeine but it was too strong I'd get sleepy during work so in the next 3 months there going to look at my options

Moon_maiden profile image
Moon_maiden in reply to Louisespice95

It is stressful, but on the plus, you know what it is now and can plan a little, that should help. It’s taken a while to get this far.

Naproxen might work, GP will be able to help.

Afrohair profile image
Afrohair

Hi there if you look on my posts I have a lot of information about how I manage endo naturally through diet and vitamins endo has been a big shock to me and my symptoms started very suddenly rather than gradually I had sudden severe pelvic pain which quickly interfered with daily life I couldn’t get out of bed or walk when on my period and afterwards eventually I read up a lot about it and asked for a referral to a specialist from my g.p it’s now a year long and I’m having a lot less pain managing it naturally I’m virtually pain free I’ve not had any operations yet and I might have the odd flare which usually occurs a week after my period but I no longer need pain killers except maybe on that day which they usually never work on that day as I think it’s new lesions forming however I’m here to chat if you need to xx

Louisespice95 profile image
Louisespice95 in reply to Afrohair

I'm thinking of changing my diet completely just to see if it makes a difference when I use to go the gym and train i hardly ever had the pain is really appreciate any ideas thanks x

Emsy profile image
Emsy

Hi welcome, you're not alone, we're all here for you. I agree with the other posts, diet can help, for me I don't drink or smoke anymore and noticed a difference. It is trial and error. There is fodmaps diet where you keep a diary of what agrees with you and what doesn't, which can be helpful. Take care xxx

Louisespice95 profile image
Louisespice95

Since I've only been diagnosed the pains horrible backs gone bloating its hell at the minute keep ringing for a doctor but they can't do anything untill lockdowns over starting a diet this week and definitely doing a book x

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