I am just looking for a little advice. Before covid19 I was having tests for endometriosis. I’ve already had the pelvic and transvaginal a an which did come back that I had a slight thickened womb. I must be one the lucky ones as I have regular monthly periods that last no longer than 7 days and have no other symptoms. I don’t have any pain or discomfort but the endometriosis diagnosis is worrying me a little. My question is on family planning. I just wanted to hear and get some guidance on how hard ladies have found it to get pregnant. I’m 32 and really want to now look to start a family
TIA
Sam
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samkwilson88
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It took me 2.5 yrs to conceive- like u I hardly had any symptoms with regular periods. Now been trying to conceive again and have also had excision surgery last year in March but nothing so far..... it’s now been 2.5yrs again 🙄🙄 I think it’s just diff for diff ppl. Good luck x
Hi, I was finally diagnosed (through lap surgery) with stage 4 endo when I was 28. I’d suffered with various symptoms since the age of 18 but was always told I was too young to have it 🙄 After trying for a baby for 18 months I was finally referred and diagnosed. I waited until Sept 2018 (age 31) to have my surgery and last year I was referred and went through 2 rounds of IVF as was told it would be unlikely I would conceive naturally due to the damage done. Today, I’m 29 week pregnant and can’t quite believe this is happening for us 🥰 I’ll be 33 this year and so if I can give you any advice, don’t wait...get checked and push push push to be seen! It’s a positive you’ve not had many symptoms hun so wish you all the luck in the wold that this will happen naturally for you! X
Please don't think a diagnosis immediately means you will struggle.
I had my left ovary and tube removed when I was 19 due to a dermoid cyst. Then a year later when having scar tissue removed they found endometriosis, removed what they could. Subsequently had 2 more surgeries to remove endo and scar tissue. Then at 27 my remaining ovary was found to have PCOS.
Having been told I would not conceive naturally and on paper was not a good candidate for IVF I went home came off my pills - I wanted a break and to see what my body felt like.
3 months later I'm pregnant! And 23 months after my son was born I gave birth to a little girl. She was conceived "accidentally" without consciously trying!
I know how lucky I am but do not write yourself off. Everyone is different. Good luck! Xxx
This is an amazing story!!!! I had my Fallopian tube and ovary removed when my appendix burst. Then had a lap to detect endo, was diagnosed. Been trying to get pregnant for two years now and now thing. Two rounds of ICSI (hubby has low sperm apparently) have made me scared that it might never happen. Only produces one embryo and each round... They have given us 20% chance of success 😔😔 the whole journey is tiresome! It’s got so bad that I am training my mind to think about life without kids just in case. Haven’t read anyone else’s story that closely compares to my own until I read yours! Would love to connect with you! I feel so encouraged!
Hi. My husband has a zero sperm count so we can never conceive naturally and I was diagnosed with stage 4 endo whilst going through ivf. I had one Fallopian tube removed and then a polyp in a different surgery. I have very large bilateral endometriomas on each ovary that were removed and reappeared before I had my 1st round of ICSI. We went through 3 rounds in total and my little boy is 20 months old. I know how hard it is but don’t give up hope x
It’s easy to say and hard to do but try not to worry about conceiving before you’ve even started trying. It takes healthy couples on average a year to get pregnant. The best advice I can give is have sex with your partner every 3 days or so, as this will give you the best chance. It’s only a 25% chance that anyone will conceive each month and most doctors won’t refer for ivf investigations until you have been actively trying for a year, sometimes two. Some women with very advanced endo get pregnant with no problems, some that have low grades can struggle so it’s hard to know who will or won’t have problems conceiving. I had to have ivf due to male factor infertility as well as my endo, but my friend also has stage 4 endo and has two children conceived naturally and relatively quickly. If you are thinking about trying start taking prenatal vitamins now as docs advise 3 months before you plan to start. Good luck x
Hi, I took a year to fall pregnant once I came off the pill.
It took 6 years to get diagnosed. I had my first laparoscopy at 23.
I fell pregnant at 27, I got the date for my second op a few weeks after I found out I was finally pregnant so had to cancel that but then had to fight for 4 years for another 2 laparoscopies.
I think so much is depending on where the Endo tissue is. Definitely tell your doctor so it’s recorded in your notes as otherwise you have to wait a year before any referral.
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