Salpingectomy due to endo

[Lovelylovey]

Hey ladies has anyone had a salpingectomy and continue to feel pain after?

[Bubble_by]

My aunt (who also has endometriosis) had this after an ectopic pregnancy (at least I think it was after this?) and she still does get some pain, particularly around a period. However she also have a bowel condition and untreated endo so it may be related to that too.

[Run4ever]

i’m waiting to have this done prior to starting IVF due to endo xx

[Lovelylovey in reply to Run4ever]

My doctor told me as well that salpingectomy will help with IVF cycles moving forward

[Sezvic]

Hi, I had bilateral salpingectomy due to severe endometriosis. And I still get bad period pain.

[Jw1989]

Me I always say to my partner I don’t understand why I still get pain!

Some days the pain is worse than before!

[Lovelylovey in reply to Jw1989]

Omg I feel the same way. It’s devastating

[maggiemay39]

Hi,

I had a bilateral salpinectomy (by choice) and endo was discovered during that op. You will still have pain even after having the tubes removed because you will still ovulate as normal. I take the pill every day to stop bleeding and help manage endo symptoms but it's not always so good. This week in particular is bad. I'm scheduled for a hysterectomy in May but not sure when that will happen now.

[Lovelylovey in reply to maggiemay39]

Mine wasn’t by choice unfortunately 😪 I am taking hormone pills but took a break from them. Maybe I should start back up

[maggiemay39 in reply to Lovelylovey]

I do feel that taking the pill helps me. I notice a difference within a day or two if I haven't taken it at the same time each day like I am supposed to. Taking pills isn't for everyone, and this is the only one I take but at the moment I wouldn't be without it. I dread to think how much worse I would be without it.

Hope you get your pain sorted soon xx

[Lily1986]

Hello.

I had both tubes and an ovary removed and unfortunately it has left me with pain every day.

Best wishes to you xx

[Lovelylovey in reply to Lily1986]

I completely understand. I am going through the same thing. It almost feels worse.

[girli1111]

I’ve now had both tubes and both ovaries removed - operations two years apart, and the good news - no endo pain since recovery from second surgery, despite mine being deep infiltrating grade 4c and apparently some still left on my bowel

[edonn]

Hi, yes indeed, unfortunately we shouldn't assume that a salpingectomy removes all pain of endo. In fact, any endo surgery doesn't guarantee removal of all pain, particularly if it was only ablation.

'Beating Endo' is a great book to educate on how the co-conditions and pain related to them affect things and unless you address from an all over approach after surgery, with a look at diet, lifestyle as well to help and not just surgery, you can still face a lot of pain.

I'm starting on this post-surgery journey myself, with another large ovarian cyst having just popped up out of nowhere 4 months after the salpingectomy.

I'm no angel though, still having a glass of red later

Hope you are well! x

[Lovelylovey in reply to edonn]

I have been struggling with my diet a lot! I will definitely look for that book.