Please help!: Hello everyone I am 2... - Endometriosis UK

Endometriosis UK

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Please help!

Love_Yellow profile image
11 Replies

Hello everyone

I am 29 years old and was diagnosed with endometriosis stage 2 in October 2019 after surgery.

Had my follow up this month and my consultant has informed my she has cleaned out my tubes and the best time to complete my family is between now and 8 month.

My question is, if I wait for a few years to start trying for another baby, does this mean I may struggle to fall and my stage progress to maybe 3-4?

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Love_Yellow profile image
Love_Yellow
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11 Replies
Faith103 profile image
Faith103

Hi. Go with what your dr recommends. I wouldn’t wait for endo to get worse before you start trying. I’ve got stage 4 and mine as progressed massively in a short space of time. Never have any regrets. Endo does not get better it gets worse. My advice which is the advice I’m going with now is don’t wait. Im 31 I’m starting fertility treatment after having surgery 4 months ago I’m not waiting they told me to wait until I’ve tried for 9 months before fertility treatment but I’ve recently found out it’s now in my womb. I’m diving in at the deep end. Have no regrets xxxx

Love_Yellow profile image
Love_Yellow in reply to Faith103

Thank you so much for getting back to me Faith.

I am so took back with how many women suffer with this.

I really do wish you all the best❤️

My only problem is my partner is not wanting to try for another baby for a while and understand the risks😢

I’m really scared that if I do wait I won’t be able to have another and also don’t want to push my partner if he’s not ready.

Any advice would be much appreciated. Xxxx

Emmarussell profile image
Emmarussell in reply to Faith103

Hi there,

You are experiencing exactly what I am going through right now reading your post gave a me a sigh of relief that someone is going through the same. Thank you! I totally agree try as soon as your doctor tells you to because it can come back and you will always think I should have listened good luck with it all! Xxxx

Faith103 profile image
Faith103

I had this problem to begin with but when I put it clear to him that it’s now or never and it might not happen and we might lose a chance he soon changed his mind. Sometimes it’s a lot to process for men especially. Just give it a bit of time. When did you have your lap. If he doesn’t want them there is not much you can do. I would suggest defo going on contraception if your not trying keep your endo from growing back as fast. Yes it’s a horrible disease xxxx

Love_Yellow profile image
Love_Yellow in reply to Faith103

Yeah I think we need to sit and have a talk.

Yeah I’m looking to going on the depo,

Had my Lap in October 2019.

Thank you so so much for everything. Xxx

Faith103 profile image
Faith103 in reply to Love_Yellow

Always here to talk we all need all the help we can get.xxxx good luck ❤️

Love_Yellow profile image
Love_Yellow in reply to Faith103

Thank you Faith that means a lot, we certainly do. Xxx

Keke123 profile image
Keke123

If you aren’t ready don’t feel pressured. I have had multiple surgeries where I have had everything cleared out. And each time they say it’s a good time to make a baby. Never have each time because I’m the same age and I’m so not ready.

Do what you feel is right! If you are ready then why not try.

At the end of the day I don’t let endo rule my life like it did before. I am now in a medicated menopause to stop my pain so no chance of babies for me hahaha but I can always come off it

PS1978 profile image
PS1978

As your doc says. After my second surgery for endo I was given 6 months to conceive. I was nearly 35 and it was like now or never. I was also recommended , if I hadn’t conceived then then to go for IVF. I was then I waiting list for IVF when miraculously conceived. If you do want another child then go with what your doctor recommends.

Love_Yellow profile image
Love_Yellow in reply to PS1978

Thank you so much for your reply💛 xxx

Barnyowl profile image
Barnyowl

Hi Yellow,

I honestly agree with your consultant if you want more children. I had my daughter when I was 25 after trying from the age of 21. I then suffered 4 miscarriages, and I was stage 4 by the time I was 30.

By the fourth miscarriage, my marriage was in tatters and I didn't know I had endometriosis. All my symptoms were dismissed as me being a pathetic woman, and fobbed off by numerous consultants saying "It can't be that bad, most women suffer period pain". It was not until I was 30 and I begged the consultant to go through keyhole that I learnt I couldn't have any more children. When I came around after surgery, I was cut from side to side, and he said "How the hell could you walk around like that?" I said, I've been telling you for years, but you didn't listen.

It was back in the day when endometriosis wasn't understood as much as it is now (I'm 47).

Sending you big hugs, and hope everything works out for you xx

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