Private Consultation - what to take? - Endometriosis UK

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Private Consultation - what to take?

LA-B-19 profile image
3 Replies

Hi all,

I am planning to book a private consultation with the NHS surgeon I believe I have been referred to (still waiting for letter to confirm, but he's the one at my hospital). We are TTC and I really want to do anything I can to speed my case along. Planning to request being put back onto his NHS list for surgery.

Can anyone advise what I would need to take with me to this appointment to be able to explain my situation to him? I am wondering if I will need to request anything from the gynaecologist I am currently under? I have been diagnosed following an ultrasound and MRI only.

Many thanks in advance!

Lizzie

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LA-B-19
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Moon_maiden profile image
Moon_maiden

Hi

When I saw a consultant privately before Christmas I wrote it all down and gave him the history that way. It meant I didn’t have to try and explain, he was ok with that. He asked questions, brief examination. I also printed out info from online medical records.

From this he straight away suggested Endometriosis, op and possible treatment. He did add me to his NHS list.

The NHS appointment I had lined up I cancelled.

StefaniaJW profile image
StefaniaJW

List all of your symptoms and bring the pictures of the past ultrasounds and MRIs.

Tell him if you are taking birth control or not, if you're taking other medication, your family history for endometriosis and/or autoimmune conditions.

Ask the following:

1) Will you be performing a diagnostic laparoscopy or thorough excision straight away?

2) Do you guarantee to only perform excision surgery and not ablation?

3) Will a team of specialists (urologist, neurologist and bowel surgeon) be present as well?

4) I intend to try to conceive naturally short after surgery. Will you make sure to preserve my fertility as much as possible during surgery (meaning draining and excising cysts, excising every piece of endometriosis, preserving my ovarian reserve, trying to save both of my tubes, etc..)?

I genuinely, genuinely hope your surgeon is a skilled and experienced excision surgeon

Jubbliesxoxo profile image
Jubbliesxoxo

Following 18 months of NHS I went to see a private consultant with regard to all my symptoms, he asked whether I had periods, contraception, referred to my doctors notes about pain, and the previous hospital notes about what they had suggested. I explained that I wanted to try for children in the next couple of years. Luckily where I have been going to the doctors so much they seem to have all the background.

He very quickly said to me he would add me to his NHS surgery list but to continue with the suggested physio for my pelvic floor that had been suggested in parallel. He also said he would diagnose if it was endometriosis when he did the laporoscopy but would also remove what he could as long as stage 1-3.

It was honestly the BEST thing I have done in this process paying to see someone privately as it was the first appointment I have felt like they cared and actually wanted to help rather than just palming me off! Good luck xxx

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